Telling parents their child has severe congenital anomalies.

S Ryan
Author Information
  1. S Ryan: Institute of Child Health, Royal Liverpool Children's Hospital, UK.

Abstract

A large number of potential malformations exist, but the key skills in communicating with the parents of a malformed baby are the same. Dissatisfaction is common in this situation and has prompted a national initiative in improving standards of disclosure of disability and malformation--the Right from the start strategy (see appendix). Key skills include keeping the family together, ie, not removing the baby unnecessarily, knowing how parents like to be informed, listening, checking that parents have understood, being nonderogatory and, most importantly, emphasizing the positive side of their newborn child.

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MeSH Term

Communication
Congenital Abnormalities
Education, Medical
Female
Forecasting
Humans
Infant, Newborn
Male
Parents
Patient Care Planning
Physician's Role
Pregnancy
Prognosis
Referral and Consultation

Word Cloud

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