The paradoxes of quality of life and its phenomenological approach.

F Loew, C H Rapin
Author Information
  1. F Loew: Institutions Universitaires de Gériatrie, University of Geneva, Switzerland.

Abstract

Although evaluation scales for quality of life (QOL) represent considerable progress in medicine, clinical experience shows striking discrepancies between QOL as evaluated by caregivers and QOL from the patient's point of view. Such paradoxes of QOL are analyzed and discussed. Autonomy is universally advocated but may be denied, especially in the hospital setting, where caregivers, family members, and doctors act as a pressure group. Circumstances that deepen the contradictions in QOL assessment include (a) a high degree of patient dependence, (b) a professional judgement that a patient is incompetent (c) professional values being placed over a patient's values, (d) a multidisciplinary team acting as a pressure group, (e) a lack of effective communication with the patient, and (f) a determination to minimize the symptoms at evaluation. QOL is multidimensional, complex, difficult to measure in clinical practice, and sometimes paradoxical.

MeSH Term

Activities of Daily Living
Aged
Aged, 80 and over
Attitude to Health
Caregivers
Communication
Female
Humans
Internal-External Control
Male
Mental Competency
Nursing Methodology Research
Patient Care Team
Patient Participation
Quality of Life
Terminal Care

Word Cloud

Created with Highcharts 10.0.0QOLpatientevaluationqualitylifeclinicalcaregiverspatient'sparadoxespressuregroupprofessionalvaluesAlthoughscalesrepresentconsiderableprogressmedicineexperienceshowsstrikingdiscrepanciesevaluatedpointviewanalyzeddiscussedAutonomyuniversallyadvocatedmaydeniedespeciallyhospitalsettingfamilymembersdoctorsactCircumstancesdeepencontradictionsassessmentincludehighdegreedependencebjudgementincompetentcplaceddmultidisciplinaryteamactingelackeffectivecommunicationfdeterminationminimizesymptomsmultidimensionalcomplexdifficultmeasurepracticesometimesparadoxicalphenomenologicalapproach

Similar Articles

Cited By