Caring for independent lives: geographies of caring for young adults with intellectual disabilities.

Andrew Power
Author Information
  1. Andrew Power: Institute for Health Research, Lancaster University, Bowland Tower East, Lancaster, Lancashire LA1 4YT, UK. andrew.power@lancaster.ac.uk

Abstract

This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

MeSH Term

Activities of Daily Living
Adolescent
Adult
Caregivers
Dependency, Psychological
Female
Geography
Humans
Intellectual Disability
Interviews as Topic
Ireland
Male
Parents
Social Behavior
Social Isolation
Sociology, Medical
Young Adult

Word Cloud

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