Shadow on my heart: a culturally grounded concept of HIV stigma among chinese injection drug users.

Xianhong Li, Honghong Wang, Guoping He, Kristopher Fennie, Ann Bartley Williams
Author Information

Abstract

Although stigma is a significant barrier to HIV prevention and treatment globally, the culture-specific psychosocial processes through which HIV-infected Chinese experience stigma have not been described. This study used grounded theory to explore the social and psychological processes of HIV-related stigma experienced by Chinese injection drug users and proposed a culture-specific concept of stigma. The focus group had six participants, and we conducted 16 individual interviews. The core category emerged as "Double struggle: Returning to normalcy." Key concepts were dual stigma and family support, while keeping secrets and active drug use were factors influencing the struggle to return to normalcy. Family responsibility played an important role in bringing family members together to cope with HIV. Recommendations for Chinese health care providers include leveraging the traditional Chinese concept of family responsibility to establish a family alliance in response to the dual stigma and providing psychological counseling and education in treatment clinics.

References

  1. Soc Sci Med. 2008 Oct;67(8):1225-35 [PMID: 18599171]
  2. Soc Sci Med. 2007 Apr;64(8):1560-71 [PMID: 17257727]
  3. Int J Epidemiol. 2007 Feb;36(1):178-84 [PMID: 17175545]
  4. AIDS Care. 2007 Jan;19(1):28-33 [PMID: 17129855]
  5. Soc Sci Med. 2009 Jun;68(12):2271-8 [PMID: 19394121]
  6. J Assoc Nurses AIDS Care. 2005 Jan-Feb;16(1):13-20 [PMID: 15903274]
  7. AIDS Behav. 2008 Mar;12(2):265-71 [PMID: 17588146]
  8. Int Q Community Health Educ. 2006-2007;27(4):321-35 [PMID: 18573754]
  9. J Assoc Nurses AIDS Care. 2009 Jan-Feb;20(1):22-30 [PMID: 19118768]
  10. J Assoc Nurses AIDS Care. 2004 Sep-Oct;15(5 Suppl):20S-27S [PMID: 15587605]
  11. AIDS Educ Prev. 2006 Dec;18(6):518-28 [PMID: 17166078]
  12. J Subst Abuse Treat. 2005 Oct;29(3):215-20 [PMID: 16183470]
  13. Addiction. 2007 Jul;102(7):1057-63 [PMID: 17567394]
  14. J Assoc Nurses AIDS Care. 2007 Nov-Dec;18(6):67-76 [PMID: 17991600]
  15. AIDS Educ Prev. 2003 Feb;15(1):49-69 [PMID: 12627743]
  16. Soc Sci Med. 2003 Jul;57(1):13-24 [PMID: 12753813]
  17. AIDS Behav. 2008 Jan;12(1):146-57 [PMID: 17364148]
  18. BMC Public Health. 2007 Oct 05;7:280 [PMID: 17919317]
  19. AIDS Behav. 2009 Dec;13(6):1160-77 [PMID: 19636699]
  20. Image (IN). 1980 Feb;12(1):20-3 [PMID: 6898518]

Grants

  1. D43 TW009579/FIC NIH HHS
  2. R34 MH083564/NIMH NIH HHS
  3. R34 MH083564-01A2/NIMH NIH HHS

MeSH Term

China
Focus Groups
HIV Infections
Humans
Stereotyping
Substance Abuse, Intravenous

Word Cloud

Created with Highcharts 10.0.0stigmaChinesefamilyHIVdrugconcepttreatmentculture-specificprocessesgroundedpsychologicalinjectionusersnormalcydualresponsibilityAlthoughsignificantbarrierpreventiongloballypsychosocialHIV-infectedexperiencedescribedstudyusedtheoryexploresocialHIV-relatedexperiencedproposedfocusgroupsixparticipantsconducted16individualinterviewscorecategoryemerged"Doublestruggle:Returning"KeyconceptssupportkeepingsecretsactiveusefactorsinfluencingstrugglereturnFamilyplayedimportantrolebringingmemberstogethercopeRecommendationshealthcareprovidersincludeleveragingtraditionalestablishallianceresponseprovidingcounselingeducationclinicsShadowheart:culturallyamongchinese

Similar Articles

Cited By