Determinants of quality of life in children with cerebral palsy: a comprehensive biopsychosocial approach.

Kuan-Lin Chen, Mei-Hui Tseng, Jeng-Yi Shieh, Lu Lu, Chien-Yu Huang
Author Information
  1. Kuan-Lin Chen: School of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan; Department of Physical Medicine and Rehabilitation, National Cheng Kung University Hospital, Tainan, Taiwan.
  2. Mei-Hui Tseng: School of Occupational Therapy, College of Medicine, National Taiwan University, Taipei, Taiwan; Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital, Taipei, Taiwan. Electronic address: mhtseng@ntu.edu.tw.
  3. Jeng-Yi Shieh: Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital, Taipei, Taiwan.
  4. Lu Lu: Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital, Taipei, Taiwan.
  5. Chien-Yu Huang: School of Occupational Therapy, College of Medicine, National Taiwan University, Taipei, Taiwan.

Abstract

This study investigated the determinants of quality of life (QOL) of children with cerebral palsy (CP) considering possible variables comprehensively from a biopsychosocial perspective by adopting the International Classification of Functioning, Disability and Health (ICF) and using a CP-specific QOL questionnaire. A total of 167 children with CP (mean age 9.06 years, SD 2.61 years) and their caregivers participated in this study. Children's QOL was measured by the Cerebral Palsy Quality of Life for Children (CP QOL-Child) - primary caregiver proxy-report form. The potential determinants of QOL were collected based on all ICF dimensions. Results of seven multiple regression models showed that the determinants of QOL in children with CP were multidimensional and biopsychosocial in nature, i.e., encompassing the domains of health condition, body functions and structures, and contextual factors of the ICF. Children's behavioral and emotional problems as well as caregiver's psychological and family-related factors were important determinants of QOL in children with CP. Knowledge of the determinants of QOL could serve as a guide in a holistic approach to evaluation and intervention targeted at these determinants to improve the QOL of children with CP.

Keywords

MeSH Term

Adaptation, Psychological
Caregivers
Cerebral Palsy
Child
Child Behavior Disorders
Family Characteristics
Female
Health Status
Humans
Linear Models
Male
Mobility Limitation
Multivariate Analysis
Proxy
Quality of Life
Severity of Illness Index
Sex Factors
Social Participation
Surveys and Questionnaires

Word Cloud

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