Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form.

Claire Z Kalpakjian, David S Tulsky, Pamela A Kisala, Charles H Bombardier
Author Information

Abstract

OBJECTIVE: To develop an item response theory (IRT) calibrated Grief and Loss item bank as part of the Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system.
DESIGN: A literature review guided framework development of grief/loss. New items were created from focus groups. Items were revised based on expert review and patient feedback and were then field tested. Analyses included confirmatory factor analysis (CFA), graded response IRT modeling and evaluation of differential item functioning (DIF).
SETTING: We tested a 20-item pool at several rehabilitation centers across the United States, including the University of Michigan, Kessler Foundation, Rehabilitation Institute of Chicago, the University of Washington, Craig Hospital and the James J. Peters/Bronx Department of Veterans Affairs hospital.
PARTICIPANTS: A total of 717 individuals with SCI answered the grief and loss questions.
RESULTS: The final calibrated item bank resulted in 17 retained items. A unidimensional model was observed (CFI=0.976; RMSEA=0.078) and measurement precision was good (theta range between -1.48 to 2.48). Ten items were flagged for DIF, however, after examination of effect sizes found this to be negligible with little practical impact on score estimates.
CONCLUSIONS: This study indicates that the SCI-QOL Grief and Loss item bank represents a psychometrically robust measurement tool. Short form items are also suggested and computer adaptive tests are available.

Keywords

References

  1. Psychol Bull. 1999 Nov;125(6):760-76 [PMID: 10589301]
  2. Death Stud. 1999 Apr-May;23(3):197-224 [PMID: 10848151]
  3. Disabil Rehabil. 2001 Oct 15;23(15):645-53 [PMID: 11720114]
  4. J Pers Soc Psychol. 2002 Nov;83(5):1150-64 [PMID: 12416919]
  5. Disabil Rehabil. 2004 May 20;26(10):614-23 [PMID: 15204515]
  6. Death Stud. 2004 Jul-Aug;28(6):491-575 [PMID: 15317140]
  7. Eval Health Prof. 2005 Jun;28(2):212-32 [PMID: 15851774]
  8. JAMA. 2005 Jun 1;293(21):2601-8 [PMID: 15928281]
  9. Med Care. 2007 May;45(5 Suppl 1):S12-21 [PMID: 17443114]
  10. PLoS Med. 2009 Aug;6(8):e1000121 [PMID: 19652695]
  11. Rehabil Psychol. 2009 Aug;54(3):306-14 [PMID: 19702429]
  12. Rehabil Psychol. 2010 Feb;55(1):12-22 [PMID: 20175630]
  13. Qual Life Res. 2010 Jun;19(5):677-85 [PMID: 20306332]
  14. Annu Rev Clin Psychol. 2011;7:511-35 [PMID: 21091190]
  15. J Stat Softw. 2011 Mar 1;39(8):1-30 [PMID: 21572908]
  16. Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S28-36 [PMID: 21958920]
  17. Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S44-51 [PMID: 21958922]
  18. Rehabil Psychol. 2012 Aug;57(3):236-47 [PMID: 22946611]
  19. J Spinal Cord Med. 2015 May;38(3):257-69 [PMID: 26010962]
  20. J Spinal Cord Med. 2015 May;38(3):270-87 [PMID: 26010963]
  21. J Consult Clin Psychol. 1989 Jun;57(3):349-57 [PMID: 2661609]
  22. Br J Clin Psychol. 1995 Nov;34 ( Pt 4):627-39 [PMID: 8563669]
  23. Am J Psychiatry. 1977 Jun;134(6):696-8 [PMID: 869041]
  24. Arch Phys Med Rehabil. 1996 Aug;77(8):816-23 [PMID: 8702378]
  25. Psychiatry Res. 1995 Nov 29;59(1-2):65-79 [PMID: 8771222]
  26. Psychol Med. 1997 Jan;27(1):49-57 [PMID: 9122308]
  27. J Abnorm Psychol. 1998 Nov;107(4):676-80 [PMID: 9830255]

Grants

  1. 5R01HD054659/NICHD NIH HHS

MeSH Term

Adult
Female
Grief
Humans
Male
Middle Aged
Psychometrics
Quality of Life
Spinal Cord Injuries
Surveys and Questionnaires
Trauma Severity Indices

Word Cloud

Created with Highcharts 10.0.0itemGriefbankitemsLossSCI-QOLmeasurementresponseIRTcalibratedSpinalreviewtestedDIFUniversitygriefloss48formcordOBJECTIVE:developtheorypartCordInjury--QualityLifesystemDESIGN:literatureguidedframeworkdevelopmentgrief/lossNewcreatedfocusgroupsItemsrevisedbasedexpertpatientfeedbackfieldAnalysesincludedconfirmatoryfactoranalysisCFAgradedmodelingevaluationdifferentialfunctioningSETTING:20-itempoolseveralrehabilitationcentersacrossUnitedStatesincludingMichiganKesslerFoundationRehabilitationInstituteChicagoWashingtonCraigHospitalJamesJPeters/BronxDepartmentVeteransAffairshospitalPARTICIPANTS:total717individualsSCIansweredquestionsRESULTS:finalresulted17retainedunidimensionalmodelobservedCFI=0976RMSEA=0078precisiongoodthetarange-12TenflaggedhoweverexaminationeffectsizesfoundnegligiblelittlepracticalimpactscoreestimatesCONCLUSIONS:studyindicatesrepresentspsychometricallyrobusttoolShortalsosuggestedcomputeradaptivetestsavailableMeasuringspinalinjury:DevelopmentvalidationpsychometriccharacteristicsshortPatientoutcomesassessmentPsychometricsQualitylifeinjuries

Similar Articles

Cited By