Developing a Personal and Social Identity With Type 1 Diabetes During Adolescence: A Hypothesis Generative Study.

Persis V Commissariat, Joslyn R Kenowitz, Jeniece Trast, Rubina A Heptulla, Jeffrey S Gonzalez
Author Information
  1. Persis V Commissariat: Joslin Diabetes Center, Boston, Massachusetts, USA.
  2. Joslyn R Kenowitz: Yeshiva University, Bronx, New York, USA.
  3. Jeniece Trast: Montefiore Medical Center, Bronx, New York, USA.
  4. Rubina A Heptulla: Yeshiva University, Bronx, New York, USA Montefiore Medical Center, Bronx, New York, USA.
  5. Jeffrey S Gonzalez: Yeshiva University, Bronx, New York, USA jeffrey.gonzalez@einstein.yu.edu.

Abstract

This study explored the incorporation of type 1 diabetes mellitus (T1DM) into self-identity among adolescents. Guided interviews explored 40 adolescents' views of T1DM in relation to their sense of self and relationships with others. Responses were analyzed using thematic analysis. Results revealed that the entire sample described T1DM as a significant burden; many described how T1DM made them feel less "normal." Adolescents described both positive and negative aspects of self-management in social relationships, though most reported benefits in sharing T1DM with friends. Females were more likely to share information about T1DM and to describe positive changes in self-perception as a result of T1DM. The psychosocial processes related to integration of T1DM into self-identity described in these qualitative data provide hypothesis-generating findings that can guide future quantitative research examining incorporation of T1DM into adolescent self-identity in relation to measures of self-esteem, peer orientation, self-management, and glycemic control.

Keywords

References

  1. J Adv Nurs. 2009 Nov;65(11):2367-75 [PMID: 19747295]
  2. J Sch Nurs. 2006 Feb;22(1):53-8 [PMID: 16435931]
  3. J Pediatr Psychol. 2000 Jun;25(4):257-67 [PMID: 10814692]
  4. J Pediatr Psychol. 2007 Jun;32(5):561-70 [PMID: 17090550]
  5. Health Serv Res. 1999 Dec;34(5 Pt 2):1189-208 [PMID: 10591279]
  6. J Pediatr Psychol. 2007 Apr;32(3):260-72 [PMID: 16837739]
  7. J Pediatr Nurs. 2006 Jun;21(3):211-21 [PMID: 16713511]
  8. Sociol Health Illn. 1983 Jul;5(2):168-95 [PMID: 10261981]
  9. J Dev Behav Pediatr. 1992 Feb;13(1):59-66 [PMID: 1556203]
  10. Diabetes Care. 1996 Feb;19(2):119-25 [PMID: 8718430]
  11. Appl Nurs Res. 2004 May;17(2):72-80 [PMID: 15154119]
  12. Diabetes Care. 2006 Jun;29(6):1389-91 [PMID: 16732028]
  13. Patient Educ Couns. 2002 Oct -Nov;48(2):139-45 [PMID: 12401417]
  14. Diabet Med. 1993 Oct;10(8):768-73 [PMID: 8261761]
  15. Diabetes Care. 1998 Jun;21(6):902-8 [PMID: 9614605]
  16. J Pediatr. 2000 Jul;137(1):107-13 [PMID: 10891831]
  17. Health Psychol. 2013 Aug;32(8):839-48 [PMID: 23477575]
  18. Comput Inform Nurs. 2007 Jan-Feb;25(1):23-9 [PMID: 17215672]
  19. J Pediatr Endocrinol Metab. 2002 Feb;15(2):115-26 [PMID: 11874175]
  20. Am J Occup Ther. 1999 Nov-Dec;53(6):547-58 [PMID: 10578432]
  21. Diabetes Care. 2005 Jan;28(1):186-212 [PMID: 15616254]
  22. Diabetes Care. 2006 Apr;29(4):818-22 [PMID: 16567821]
  23. Curr Diab Rep. 2006 Apr;6(2):117-22 [PMID: 16542622]
  24. Diabetes Care. 2007 Oct;30(10):2441-6 [PMID: 17666466]
  25. J Pediatr Psychol. 2007 Aug;32(7):794-806 [PMID: 17426042]
  26. Diabetes Care. 2009 Jan;32 Suppl 1:S62-7 [PMID: 19118289]
  27. Child Adolesc Psychiatr Clin N Am. 2003 Jul;12(3):439-58, vi [PMID: 12910817]
  28. J Pediatr Nurs. 2006 Dec;21(6):412-24 [PMID: 17101399]
  29. Gen Hosp Psychiatry. 1993 Mar;15(2):82-8 [PMID: 8472944]
  30. Patient Educ Couns. 2010 Jul;80(1):56-63 [PMID: 20045279]
  31. Diabetes Educ. 2008 Nov-Dec;34(6):1004-12 [PMID: 19075082]
  32. Annu Rev Psychol. 2001;52:83-110 [PMID: 11148300]
  33. J Fam Psychol. 2010 Jun;24(3):299-306 [PMID: 20545403]
  34. J Dev Behav Pediatr. 2002 Aug;23(4):271-80 [PMID: 12177575]
  35. J Nurs Res. 2010 Dec;18(4):258-65 [PMID: 21139445]
  36. Soc Sci Med. 2000 Feb;50(3):387-96 [PMID: 10626762]

Grants

  1. P30 DK020541/NIDDK NIH HHS
  2. P60 DK020541/NIDDK NIH HHS
  3. R18 DK098742/NIDDK NIH HHS

MeSH Term

Adolescent
Diabetes Mellitus, Type 1
Female
Humans
Interpersonal Relations
Male
Peer Group
Qualitative Research
Self Care
Self Concept
Sex Factors
Social Identification
Social Support
Young Adult

Word Cloud

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