Ethical Considerations in Research Participation Virality.

Carol Ellis-Barton
Author Information
  1. Carol Ellis-Barton: University College Dublin, Ireland carolellisbarton@gmail.com.

Abstract

This article seeks to commence and encourage discussion around the upcoming ethical challenges of virality in network structures. When the call for participation in a research project on lupus in Ireland went from an advertisement in a newsletter to a meme (unit of transmissible information) on a closed Facebook page, the ethical considerations of virality were raised. The article analyzes the Association of Internet Researchers guidelines, Facebook policies, and the context of privacy in relation to virality. Virality creates the leverage for methodological pluralism. The nature of the inquiry can determine the method rather than the other way around. Viral ethical considerations are evolving due to the cyber world becoming the primary meme of communication, with flexibility in the researcher's protocol providing opportunities for efficient, cost-effective, and diverse recruitment.

Keywords

MeSH Term

Biomedical Research
Communication
Confidentiality
Humans
Internet
Ireland
Lupus Erythematosus, Systemic
Patient Selection
Privacy
Research Subjects
Social Media

Word Cloud

Created with Highcharts 10.0.0ethicalviralityresearcharticlearoundmemeFacebookconsiderationsViralityseekscommenceencouragediscussionupcomingchallengesnetworkstructurescallparticipationprojectlupusIrelandwentadvertisementnewsletterunittransmissibleinformationclosedpageraisedanalyzesAssociationInternetResearchersguidelinespoliciescontextprivacyrelationcreatesleveragemethodologicalpluralismnatureinquirycandeterminemethodratherwayViralevolvingduecyberworldbecomingprimarycommunicationflexibilityresearcher'sprotocolprovidingopportunitiesefficientcost-effectivediverserecruitmentEthicalConsiderationsResearchParticipationinternetprivacy/confidentialitypublichealthqualitativemethodsethics

Similar Articles

Cited By