Latino Families' Experiences With Autism Services: Disparities, Capabilities, and Occupational Justice.

Amber M Angell, Gelya Frank, Olga Solomon
Author Information
  1. Amber M Angell: 1 University of Southern California, Los Angeles, CA, USA.
  2. Gelya Frank: 1 University of Southern California, Los Angeles, CA, USA.
  3. Olga Solomon: 1 University of Southern California, Los Angeles, CA, USA.

Abstract

This article examines six cases of publicly funded Applied Behavior Analysis (ABA) therapy for Latino children with autism spectrum disorder (ASD) to contribute to thinking about occupational justice. In this ethnographic study of six Latino families of children with ASD in Los Angeles County, all families were offered ABA for their children, but five families experienced occupational challenges leading them to insist on modifications of ABA or to opt out of the service. We consider in each case (a) how the families' experiences can be understood occupationally, (b) how ABA affected the functionings and capabilities of the children and their families, and (c) how the parents' accounts relate to occupational justice. Applying the capabilities approach can help operationalize the concept of occupational justice as a tool to evaluate social policy across cases.

Keywords

References

  1. Occup Ther Health Care. 1990;6(4):1-17 [PMID: 23931133]
  2. J Consult Clin Psychol. 1987 Feb;55(1):3-9 [PMID: 3571656]
  3. Autism. 2016 Jan;20(1):106-15 [PMID: 25948601]
  4. J Autism Dev Disord. 2016 Feb;46(2):720-31 [PMID: 26373767]
  5. Acad Med. 2005 Oct;80(10):918-24 [PMID: 16186611]
  6. Am J Occup Ther. 1991 Apr;45(4):300-10 [PMID: 2035601]
  7. PLoS One. 2016 Mar 25;11(3):e0151970 [PMID: 27015098]
  8. Soc Sci Med. 2014 Sep;117:50-7 [PMID: 25042544]

Grants

  1. R01 MH089474/NIMH NIH HHS
  2. TL1 TR000132/NCATS NIH HHS

Word Cloud

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