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AIDS and behavior
01, 2018;22 (1): 297-307.

Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions.

Sarah Iribarren, Karolynn Siegel, Sabina Hirshfield, Susan Olender, Joachim Voss, Joseph Krongold, Heidi Luft, Rebecca Schnall
Author Information
  1. Sarah Iribarren: School of Nursing, Columbia University, New York, NY, USA.
  2. Karolynn Siegel: Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY, USA.
  3. Sabina Hirshfield: Research and Evaluation Unit, Public Health Solutions, New York, NY, USA.
  4. Susan Olender: College of Physicians and Surgeons, Columbia University, New York, NY, USA.
  5. Joachim Voss: Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA.
  6. Joseph Krongold: School of Nursing, Columbia University, New York, NY, USA.
  7. Heidi Luft: School of Nursing, Columbia University, New York, NY, USA.
  8. Rebecca Schnall: School of Nursing, Columbia University, New York, NY, USA. rb897@columbia.edu. ORCID
PMID: 28488165 DOI: 10.1007/s10461-017-1786-6

Abstract

People living with HIV (PLWH) are living longer, but many are now affected by HIV-associated non-AIDS (HANA) conditions and their associated adverse symptoms. An online survey was conducted with 769 PLWH with HANA conditions in the US. Information was elicited on symptoms experienced, self-management strategies employed, and the helpfulness of these strategies. Open ended responses were collected for self-management strategies. A qualitative data analytic approach was used to organize the 4036 self-management strategies into thematic categories, with eight main categories emerging, including: taking medication, modifying activity, altering diet, seeking help, waiting, substance use, managing thoughts and attitudes, and altering the physical environment. Of the self-management strategy subcategories, social support was the most helpful self-management strategy with waiting/doing nothing being the least helpful approach. Findings can be used to inform the development of self-management interventions and to support health care professionals in recommending symptom self-management strategies to their patients.

Keywords

HANA conditions HIV Online survey Self-management strategies Symptoms

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Grants

  1. K23 NR017210/NINR NIH HHS
  2. R01 NR015737/NINR NIH HHS
  3. T32 NR014205/NINR NIH HHS
  4. NR015737/National Institute of Nursing Research (US)

MeSH Term

Adaptation, Psychological
Adult
Aged
Female
HIV Infections
Humans
Internet
Male
Middle Aged
Self Care
Self-Management
Social Support
Surveys and Questionnaires
Journal Article Research Support, N.I.H., Extramural
Article has an altmetric score of 15

Word Cloud

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