Towards Supporting Patient Decision-making In Online Diabetes Communities.

Jing Zhang, Rebecca Marmor, Jina Huh
Author Information
  1. Jing Zhang: University of California San Diego, San Diego, CA.
  2. Rebecca Marmor: University of California San Diego, San Diego, CA.
  3. Jina Huh: University of California San Diego, San Diego, CA.

Abstract

As of 2014, 29.1 million people in the US have diabetes. Patients with diabetes have evolving information needs around complex lifestyle and medical decisions. As their conditions progress, patients need to sporadically make decisions by understanding alternatives and comparing options. These moments along the decision-making process present a valuable opportunity to support their information needs. An increasing number of patients visit online diabetes communities to fulfill their information needs. To understand how patients attempt to fulfill the information needs around decision-making in online communities, we reviewed 801 posts from an online diabetes community and included 79 posts for in-depth content analysis. The findings revealed motivations for posters' inquiries related to decision-making including the changes in disease state, increased self-awareness, and conflict of information received. Medication and food were the among the most popular topics discussed as part of their decision-making inquiries. Additionally, We present insights for automatically identifying those decision-making inquiries to efficiently support information needs presented in online health communities.

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Grants

  1. K01 LM011980/NLM NIH HHS

MeSH Term

Decision Making
Diabetes Mellitus
Humans
Information Seeking Behavior
Internet
Self Care
Self-Help Groups

Word Cloud

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