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12, 2020;26 (4): 2689-2706.

How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review.

Ross J Lordon, Sean P Mikles, Laura Kneale, Heather L Evans, Sean A Munson, Uba Backonja, William B Lober
Author Information
  1. Sean P Mikles: University of Washington School of Medicine, USA. ORCID
  2. Laura Kneale: University of Washington School of Medicine, USA; University of Washington-Bothell, USA.
  3. Heather L Evans: Medical University of South Carolina, USA. ORCID
  4. Sean A Munson: University of Washington College of Engineering, USA.
  5. Uba Backonja: University of Washington School of Medicine, USA; University of Washington-Tacoma, USA.
  6. William B Lober: University of Washington School of Medicine, USA; University of Washington, USA.
PMID: 32567460 DOI: 10.1177/1460458220928184

Abstract

INTRODUCTION: Many patients use mobile devices to track health conditions by recording patient-generated health data. However, patients and clinicians may disagree how to use these data.
OBJECTIVE: To systematically review the literature to identify how patient-generated health data and patient-reported outcomes collected outside of clinical settings can affect patient-clinician relationships within surgery and primary care.
METHODS: Six research databases were queried for publications documenting the effect of patient-generated health data or patient-reported outcomes on patient-clinician relationships. We conducted thematic synthesis of the results of the included publications.
RESULTS: Thirteen of the 3204 identified publications were included for synthesis. Three main themes were identified: patient-generated health data supported patient-clinician communication and health awareness, patients desired for their clinicians to be involved with their patient-generated health data, which clinicians had difficulty accommodating, and patient-generated health data platform features may support or hinder patient-clinician collaboration.
CONCLUSION: Patient-generated health data and patient-reported outcomes may improve patient health awareness and communication with clinicians but may negatively affect patient-clinician relationships.

Keywords

patient reported outcomes patient-generated health data primary care professional-patient relations [Mesh] surgery

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Grants

  1. T15 LM007442/NLM NIH HHS

MeSH Term

Communication
Humans
Patient Reported Outcome Measures
Primary Health Care
Journal Article Research Support, N.I.H., Extramural Systematic Review
Article has an altmetric score of 7

Word Cloud

Created with Highcharts 10.0.0healthdatapatient-generatedpatient-clinicianoutcomescliniciansmaypatient-reportedpatientsaffectrelationshipspublicationsusereviewsurgeryprimarycaresynthesisincludedcommunicationawarenesspatientINTRODUCTION:ManymobiledevicestrackconditionsrecordingHoweverdisagreeOBJECTIVE:systematicallyliteratureidentifycollectedoutsideclinicalsettingscanwithinMETHODS:SixresearchdatabasesquerieddocumentingeffectconductedthematicresultsRESULTS:Thirteen3204identifiedThreemainthemesidentified:supporteddesiredinvolveddifficultyaccommodatingplatformfeaturessupporthindercollaborationCONCLUSION:Patient-generatedimprovenegativelyrelationships:systematicreportedprofessional-patientrelations[Mesh]

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