'LEADERS': A culturally tailored approach to genetic counseling for minority populations.
Nehama Cohen Kfir, Mary Rudolf, Miriam Ethel Bentwich, Nomy Dickman, Tzipora C Falik-Zaccai
Author Information
- Nehama Cohen Kfir: Azrieli Faculty of Medicine, Bar Ilan University, Safed, Israel.
- Mary Rudolf: Azrieli Faculty of Medicine, Bar Ilan University, Safed, Israel.
- Miriam Ethel Bentwich: Azrieli Faculty of Medicine, Bar Ilan University, Safed, Israel.
- Nomy Dickman: Azrieli Faculty of Medicine, Bar Ilan University, Safed, Israel.
- Tzipora C Falik-Zaccai: Azrieli Faculty of Medicine, Bar Ilan University, Safed, Israel.
No abstract text available.
- Austin, J., Semaka, A., & Hadjipavlou, G. (2014). Conceptualizing Genetic Counseling as Psychotherapy in the Era of Genomic Medicine. Journal of Genetic Counseling, 23(6), 903-909. https://doi.org/10.1007/s10897-014-9728-1
- Barry, M. J., & Edgman-levitan, S. (2012). Shared Decision Making - The Pinnacle of Patient-Centered Care. New England Journal of Medicine, 366(9), 780-781.
- Berlin, E. A., & Fowkes, W. C. (1983). A teaching framework for cross-cultural health care. Application in family practice. The. Western Journal of Medicine, 139(6), 934-938.
- Bhui, K., Warfa, N., Edonya, P., McKenzie, K., & Bhugra, D. (2007). Cultural competence in mental health care: A review of model evaluations. BMC Health Services Research, 7, 15. https://doi.org/10.1186/1472-6963-7-15
- Biesecker, B. B. (2001). Goals of genetic counseling. Clinical Genetics, 60(5), 323-330. https://doi.org/10.1034/j.1399-0004.2001.600501.x
- Biesecker, B., Austin, J., & Caleshu, C. (2017). Theories for Psychotherapeutic Genetic Counseling: Fuzzy Trace Theory and Cognitive Behavior Theory. Journal of Genetic Counseling, 26(2), 322-330. https://doi.org/10.1007/s10897-016-0023-1
- Birch, P. H., Adam, S., Coe, R. R., Port, A. V., Vortel, M., Friedman, J. M., & Légaré, F. (2019). Assessing Shared Decision-Making Clinical Behaviors Among Genetic Counsellors. Journal of Genetic Counseling, 28(1), 40-49. https://doi.org/10.1007/s10897-018-0285-x
- Cohen-Kfir, N., Bentwich, M. E., Kent, A., Dickman, N., Tanus, M., Higazi, B., Kalfon, L., Rudolf, M., & Falik-Zaccai, T. C. (2020). Challenges to effective and autonomous genetic testing and counseling for ethno-cultural minorities: A qualitative study. BMC Medical Ethics, 21(1), 98. https://doi.org/10.1186/s12910-020-00537-8
- Elwyn, G., Frosch, D., Thomson, R., Joseph-Williams, N., Lloyd, A., Kinnersley, P., Cording, E., Tomson, D., Dodd, C., Rollnick, S., Edwards, A., & Barry, M. (2012). Shared decision making: A model for clinical practice. Journal of General Internal Medicine, 27(10), 1361-1367. https://doi.org/10.1007/s11606-012-2077-6
- Elwyn, G., Gray, J., & Clarke, A. (2000). Shared decision making and non-directiveness in genetic counselling. Journal of Medical Genetics, 37(2), 135-138. https://doi.org/10.1136/jmg.37.2.135
- Epner, D. E., & Baile, W. F. (2012). Patient-centered care: The key to cultural competence. Annals of Oncology, 23(SUPPL.3), 33-42. https://doi.org/10.1093/annonc/mds086
- Fosnot, C. T., & Perry, R. S. (2005). CONSTRUCTIVISM: Theory, perspectives ans practice (second edi; Fonsot Cathrine Twomey., ed.). Teachers College, Columbia University.
- Gene Hallford, H., Coffman, M. A., Obregon-Tito, A. J., Morales, A. H., & Williamson Dean, L. (2020). Access barriers to genetic services for Spanish-speaking families in states with rapidly growing migrant populations. Journal of Genetic Counseling, 29(3), 365-380. https://doi.org/10.1002/jgc4.1195
- Grupe, D. W., & Nitschke, J. B. (2013). Uncertainty and Anticipation in Anxiety: An integrated neurobiological and psychological perspective. Nature Reviews Neuroscience, 14(7), 488-501. https://doi.org/10.1016/j.pestbp.2011.02.012.Investigations
- Hartmann, J. E., Veach, P. M. C., MacFarlane, I. M., & LeRoy, B. S. (2015). Genetic counselor perceptions of genetic counseling session goals: A validation study of the reciprocal-engagement model. Journal of Genetic Counseling, 24(2), 225-237. https://doi.org/10.1007/s10897-013-9647-6
- Jafari Amineh, R., & Davatgari Asl, H. (2015). Journal of Social Sciences, Literature and Languages Review of Constructivism and Social Constructivism. ©2015 JSSLL Journal, 1(1), 9-16.
- Kessler, S. (1999). Psychological aspects of genetic counseling: XIII. Empathy and decency. Journal of Genetic Counseling, 8(6), 333-343. https://doi.org/10.1023/A:1022967208933
- Kessler, S. (2001). Psychological aspects of genetic counseling. XIV. Nondirectiveness and counseling skills. Genetic Testing, 5(3), 187-191. https://doi.org/10.1089/10906570152742227
- Kleinman, A., & Benson, P. (2006). Anthropology in the clinic: The problem of cultural competency and how to fix it. PLoS Med, 3(10), 1673-1676. https://doi.org/10.1371/journal.pmed.0030294
- Lewis, L. J. (2002). Models of genetic counseling and their effects on multicultural genetic counseling. Journal of Genetic Counseling, 11(3), 193-212. https://doi.org/10.1023/A:1015279123108
- Lobban, F., Barrowclough, C., & Jones, S. (2003). A review of the role of illness models in severe mental illness. Clinical Psychology Review, 23, 171-196. https://doi.org/10.1016/S0272-7358(02)00230-1
- Resta, R., Biesecker, B. B., Bennett, R. L., Blum, S., Hahn, S. E., Strecker, M. N., & Williams, J. L. (2006). A new definition of genetic counseling: National Society of Genetic Counselors’ Task Force report. Journal of Genetic Counseling, 15(2), 77-83. https://doi.org/10.1007/s10897-005-9014-3
- Sagi, M., & Uhlmann, W. R. (2013). Genetic counseling services and training of genetic counselors in Israel: An overview. Journal of Genetic Counseling, 22(6), 890-896. https://doi.org/10.1007/s10897-013-9576-4
- Sharkia, R., Tarabeia, J., Zalan, A., Atamany, E., Athamna, M., & Allon-Shalev, S. (2015). Factors affecting the utilization of genetic counseling services among Israeli Arab women. Prenatal Diagnosis, 35, 370-375. https://doi.org/10.1002/pd.4550
- Shiloh, S. (2006). Illness representations, self-regulation, and genetic counseling: A theoretical review. Journal of Genetic Counseling, 15(5), 325-337. https://doi.org/10.1007/s10897-006-9044-5
- Weil, J. (2001). Multicultural education and genetic counseling. Clinical Genetics, 59(7), 143-149. https://doi.org/10.1034/j.1399-0004.2001.590301.x
- Weil, J. (2003). Psychosocial genetic counseling in the post-nondirective era: A point of view. Journal of Genetic Counseling, 12(3), 199-211. https://doi.org/10.1023/A:1023234802124
- White, M. K., Keller, V., & Horrigan, L. A. (2003). Beyond informed consent : The shared decision making process. JCOM, 10(6), 323-328.
- Zlotogora, J., Carmi, R., Lev, B., & Shalev, S. A. (2009). A targeted population carrier screening program for severe and frequent genetic diseases in Israel. European Journal of Human Genetics, 17(5), 591-597. https://doi.org/10.1038/ejhg.2008.241