What are the consequences of caring for older people and what interventions are effective for supporting unpaid carers? A rapid review of systematic reviews.

Gemma F Spiers, Jennifer Liddle, Tafadzwa Patience Kunonga, Ishbel Orla Whitehead, Fiona Beyer, Daniel Stow, Claire Welsh, Sheena E Ramsay, Dawn Craig, Barbara Hanratty
Author Information
  1. Gemma F Spiers: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK gemma-frances.spiers@newcastle.ac.uk. ORCID
  2. Jennifer Liddle: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID
  3. Tafadzwa Patience Kunonga: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID
  4. Ishbel Orla Whitehead: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID
  5. Fiona Beyer: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.
  6. Daniel Stow: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID
  7. Claire Welsh: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID
  8. Sheena E Ramsay: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.
  9. Dawn Craig: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.
  10. Barbara Hanratty: Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK. ORCID

Abstract

OBJECTIVES: To identify and map evidence about the consequences of unpaid caring for all carers of older people, and effective interventions to support this carer population.
DESIGN: A rapid review of systematic reviews, focused on the consequences for carers of unpaid caring for older people, and interventions to support this heterogeneous group of carers. Reviews of carers of all ages were eligible, with any outcome measures relating to carers' health, and social and financial well-being. Searches were conducted in MEDLINE, PsycInfo and Epistemonikos (January 2000 to January 2020). Records were screened, and included systematic reviews were quality appraised. Summary data were extracted and a narrative synthesis produced.
RESULTS: Twelve systematic reviews reporting evidence about the consequences of caring for carers (n=6) and assessing the effectiveness of carer interventions (n=6) were included. The review evidence typically focused on mental health outcomes, with little information identified about carers' physical, social and financial well-being. Clear estimates of the prevalence and severity of carer outcomes, and how these differ between carers and non-carers, were absent. A range of interventions were identified, but there was no strong evidence of effectiveness. In some studies, the choice of outcome measure may underestimate the full impact of an intervention.
CONCLUSIONS: Current evidence fails to fully quantify the impacts that caring for older people has on carers' health and well-being. Information on social patterning of the consequences of caring is absent. Systematic measurement of a broad range of outcomes, with comparison to the general population, is needed to better understand the true consequences of caring. Classification of unpaid caring as a social determinant of health could be an effective lever to bring greater focus and support to this population. Further work is needed to develop and identify suitable interventions in order to support evidence-based policymaking and practice.

Keywords

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Grants

  1. G1002391/Medical Research Council
  2. MR/K02325X/1/Medical Research Council

MeSH Term

Aged
Caregivers
Health Services
Humans
Outcome Assessment, Health Care
Systematic Reviews as Topic

Word Cloud

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