Gaining 'clarity through specificity' in invited patient participation: A case study of a multifaceted participatory practice in the Netherlands.

Kasper Kruithof, Clementine Wijkmans, Lotte Ruijter, Janneke Harting
Author Information
  1. Kasper Kruithof: Department of Public and Occupational Health, Amsterdam Public Health Institute, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands. ORCID
  2. Clementine Wijkmans: Regional Public Health Service 'Hart voor Brabant', 's-Hertogenbosch, Netherlands.
  3. Lotte Ruijter: Department of Public and Occupational Health, Amsterdam Public Health Institute, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands.
  4. Janneke Harting: Department of Public and Occupational Health, Amsterdam Public Health Institute, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands. ORCID

Abstract

Patient participation is a highly valued principle. Yet, it remains difficult both to achieve it and to assess its added value, as participation is often started without much clarification of what it means or aims to do. In theory, patients may be invited to participate for reasons of democracy, empowerment, knowledge integration and instrumentalism. By making these rationales explicit in a participatory practice in the Netherlands, we aimed to contribute to the long-needed 'clarity through specificity' in participation. Apart from the rationales, our analytic framework included dimensions of the participatory process, reflected by questions like 'Who participates?', 'In what?' and 'With how much control?' We used this framework to conduct and analyse semi-structured interviews (n = 51) with patient participants (20), professionals (14) and researchers (17). We found that the participatory practice included all rationales and that the actual manifestation of an intended rationale very much depended on the design of the dimensions of the participatory process. We conclude that invited participation may gain in clarity by making explicit the rationales for participation. If put at the centre of attention, and made the leading factor in the design of the dimensions of the participatory process, explicit rationales may support the realisation of participation in practice and prevent it from resulting in mere window-dressing.

Keywords

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MeSH Term

Community Participation
Humans
Netherlands
Patient Participation

Word Cloud

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