Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis.

Choy Qing Cham, Norhayati Ibrahim, Ching Sin Siau, Clarisse Roswini Kalaman, Meng Chuan Ho, Amira Najiha Yahya, Uma Visvalingam, Samsilah Roslan, Fairuz Nazri Abd Rahman, Kai Wei Lee
Author Information
  1. Choy Qing Cham: Center for Healthy Ageing and Wellness (H-CARE), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia. ORCID
  2. Norhayati Ibrahim: Center for Healthy Ageing and Wellness (H-CARE), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.
  3. Ching Sin Siau: Center for Community Health Studies (ReaCH), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia. ORCID
  4. Clarisse Roswini Kalaman: Center for Healthy Ageing and Wellness (H-CARE), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.
  5. Meng Chuan Ho: Centre for Pre-U Studies, UCSI University (Springhill Campus), Port Dickson 71010, Malaysia.
  6. Amira Najiha Yahya: Department of Educational Psychology & Counselling, Faculty of Education, Universiti Malaya, Kuala Lumpur 50603, Malaysia. ORCID
  7. Uma Visvalingam: Department of Psychiatry, Hospital Putrajaya, Putrajaya 62250, Malaysia.
  8. Samsilah Roslan: Department of Foundation of Education, Faculty of Educational Studies, Universiti Putra Malaysia, Serdang 43400, Malaysia. ORCID
  9. Fairuz Nazri Abd Rahman: Psychiatry Department, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur 56000, Malaysia. ORCID
  10. Kai Wei Lee: Department of Medical Microbiology, Faculty of Medicine and Health Sciences, Universiti Putra Malaysia, Selangor 43400, Malaysia. ORCID

Abstract

Due to the increasing importance of caregivers in the treatment outcomes of patients with mental illness, this study aimed to systematically review studies investigating the former's caregiver burden and determine its prevalence. An open search, without filters, was conducted. Articles were selected from Medline, Scopus, and PubMed from inception to 30 April 2022 using the PRISMA protocol. Subgroup analyses examined the between-group differences by study setting, measurements used, and disorder type. A total of 5034 caregivers from 23 countries were included in this review. Thirty-nine studies were included in the systematic review, and, among them, twenty-six were deemed eligible for meta-analysis. The overall pooled prevalence of caregiver burden among caregivers of individuals with mental illness was 31.67% (95% CI = 26.22-37.12). Pooled prevalence was the highest among care recipients receiving treatment in a hospital setting (36.06%; 95% CI = 22.50-49.63), followed by the community and clinic settings. Caregiver prevalence values were higher for burden measured using the Zarit Burden Interview (38.05%; 95% CI = 27.68-48.43). compared with other instruments, and for carers of care recipients with psychosis (35.88%; 95% CI = 27.03-44.72) compared with those without. Thus, targeted interventions should focus on caregivers of patients in hospital settings and with psychotic symptoms.

Keywords

References

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Grants

  1. (FRGS/1/2020/SS0/UCSI/02/1)/Fundamental Research Grant Scheme from the Ministry of Higher Education, Malaysia

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