They have a Voice; are we Listening?

Joseph Veneziano, Shannon Shea
Author Information
  1. Joseph Veneziano: NuPath, Inc., Woburn, MA USA. ORCID
  2. Shannon Shea: Endicott College, Beverly, MA USA. ORCID

Abstract

The field of applied behavior analysis (ABA) has produced powerful changes and improvements to the lives of many. However, the field is not immune from criticism. One criticism from those outside the field is that the goal of ABA therapy is to make Autistic people appear "indistinguishable" from their peers. This paper examines "indistinguishability" and its implications by defining "indistinguishable" in behavior analytic terms, exploring how the term was used in two notable studies in the field (Lovaas, 1987, [1], 3-9; Rekers & Lovaas, 1974, [2], 173-190), and providing a review of the social validity and ethical implications of having "indistinguishability" as an explicit or implied goal. This is partially accomplished by incorporating concerns from the Autistic self-advocate community. We argue that the Autistic self-advocate community's concerns surrounding "indistinguishability" as a goal have a degree of legitimacy and need to be given due consideration. Suggestions for addressing these concerns in ABA degree programs and research are discussed, emphasizing the importance of considering stakeholder values, taking criticisms seriously, and making changes when necessary.

Keywords

References

  1. J Appl Behav Anal. 1994 Spring;27(1):145-52 [PMID: 16795820]
  2. Behaviorism. 1974 Spring;2(1):1-84 [PMID: 11664410]
  3. J Appl Behav Anal. 1975 Winter;8(4):411-20 [PMID: 16795506]
  4. J Appl Behav Anal. 2008 Winter;41(4):527-38 [PMID: 19192857]
  5. J Appl Behav Anal. 2008 Winter;41(4):609-15 [PMID: 19192864]
  6. J Appl Behav Anal. 1977 Fall;10(3):559-71 [PMID: 924925]
  7. J Appl Behav Anal. 1997 Fall;30(3):459-73 [PMID: 9316259]
  8. J Comp Physiol Psychol. 1955 Dec;48(6):444-50 [PMID: 13271615]
  9. Res Dev Disabil. 2009 Sep-Oct;30(5):961-8 [PMID: 19246176]
  10. J Appl Behav Anal. 1968 Spring;1(1):63-71 [PMID: 16795161]
  11. J Appl Behav Anal. 1997 Spring;30(1):169-72 [PMID: 9103993]
  12. J Appl Behav Anal. 1972 Winter;5(4):381-7 [PMID: 16795362]
  13. J Appl Behav Anal. 1988 Winter;21(4):357-68 [PMID: 3225253]
  14. J Appl Behav Anal. 1999 Spring;32(1):95-8 [PMID: 10201105]
  15. J Consult Clin Psychol. 1987 Feb;55(1):3-9 [PMID: 3571656]
  16. J Appl Behav Anal. 2013 Dec;46(4):817-20 [PMID: 24114614]
  17. J Appl Behav Anal. 1977 Spring;10(1):49-59 [PMID: 845098]
  18. J Appl Behav Anal. 1974 Summer;7(2):173-90 [PMID: 4436165]
  19. J Forensic Leg Med. 2020 May;72:101930 [PMID: 32452446]
  20. J Clin Invest. 2008 Jan;118(1):6-14 [PMID: 18172517]
  21. J Appl Behav Anal. 2011 Winter;44(4):897-901 [PMID: 22219537]
  22. J Appl Behav Anal. 2002 Fall;35(3):213-31 [PMID: 12365736]
  23. J Appl Behav Anal. 2003 Winter;36(4):575-8 [PMID: 14768674]
  24. J Abnorm Child Psychol. 1974 Jun;2(2):99-116 [PMID: 4430820]
  25. J Appl Behav Anal. 2003 Summer;36(2):249-51 [PMID: 12858989]
  26. J Appl Behav Anal. 1988 Fall;21(3):277-80 [PMID: 3198548]
  27. J Exp Anal Behav. 1962 Jul;5:343-52 [PMID: 13863503]
  28. J Speech Hear Disord. 1960 Feb;25:8-12 [PMID: 14405852]
  29. J Appl Behav Anal. 1978 Summer;11(2):203-14 [PMID: 16795590]
  30. J Appl Behav Anal. 1977 Fall;10(3):549-52 [PMID: 924923]
  31. J Appl Behav Anal. 1975 Spring;8(1):1-12 [PMID: 1141076]
  32. J Appl Behav Anal. 2008 Spring;41(1):117-23 [PMID: 18468285]
  33. J Appl Behav Anal. 2009 Fall;42(3):665-9 [PMID: 20190926]
  34. J Appl Behav Anal. 2020 Sep;53(4):1837 [PMID: 33084123]
  35. J Appl Behav Anal. 2003 Summer;36(2):253-7 [PMID: 12858990]
  36. Med Health Care Philos. 2020 Mar;23(1):3-15 [PMID: 31542873]
  37. J Appl Behav Anal. 2002 Spring;35(1):1-12 [PMID: 11936542]
  38. J Appl Behav Anal. 2014 Spring;47(1):16-36 [PMID: 24615474]
  39. J Appl Behav Anal. 1980 Winter;13(4):677-91 [PMID: 7204284]
  40. J Appl Behav Anal. 1993 Winter;26(4):617-30 [PMID: 8307839]
  41. Behav Anal. 2009 Spring;32(1):85-103 [PMID: 22478515]
  42. J Appl Behav Anal. 1977 Fall;10(3):553-7 [PMID: 924924]
  43. Anal Verbal Behav. 2017 Jun 27;33(2):275-282 [PMID: 30854302]
  44. J Appl Behav Anal. 1981 Fall;14(3):249-60 [PMID: 7298537]
  45. J Appl Behav Anal. 1991 Summer;24(2):189-204 [PMID: 1890040]
  46. J Appl Behav Anal. 1978 Spring;11(1):95-109 [PMID: 16795589]
  47. J Appl Behav Anal. 2012 Summer;45(2):437-41 [PMID: 22844152]
  48. Behav Anal Pract. 2012 Summer;5(1):15-25 [PMID: 23326627]
  49. Behav Res Ther. 1967 May;5(2):103-11 [PMID: 6025711]
  50. J Appl Behav Anal. 2013 Summer;46(2):444-54 [PMID: 24114159]
  51. J Appl Behav Anal. 2016 Dec;49(4):965-969 [PMID: 27279459]
  52. J Appl Behav Anal. 1988 Fall;21(3):245-51 [PMID: 16795716]
  53. J Fam Psychol. 2018 Feb;32(1):151-156 [PMID: 29543489]
  54. J Child Psychol Psychiatry. 2017 May;58(5):603-611 [PMID: 27917470]
  55. J Appl Behav Anal. 2020 Apr;53(2):1145-1152 [PMID: 31608982]
  56. J Appl Behav Anal. 2008 Summer;41(2):249-54 [PMID: 18595289]
  57. J Appl Behav Anal. 1973 Spring;6(1):1-14 [PMID: 16795380]
  58. J Appl Behav Anal. 1983 Winter;16(4):395-415 [PMID: 6654771]
  59. Sci Rep. 2017 Jun 9;7(1):3163 [PMID: 28600558]
  60. J Appl Behav Anal. 1968 Fall;1(3):193-200 [PMID: 16795177]
  61. J Appl Behav Anal. 2009 Winter;42(4):889-94 [PMID: 20514199]
  62. J Appl Behav Anal. 1990 Spring;23(1):79-89 [PMID: 2186017]
  63. Am J Prev Med. 1998 May;14(4):245-58 [PMID: 9635069]
  64. J Appl Behav Anal. 2008 Winter;41(4):617-22 [PMID: 19192865]
  65. J Autism Dev Disord. 2019 Mar;49(3):819-833 [PMID: 30361940]
  66. Behav Anal Pract. 2018 Sep 20;12(3):654-666 [PMID: 31976276]
  67. J Appl Behav Anal. 1973 Spring;6(1):131-65 [PMID: 16795385]
  68. J Appl Behav Anal. 1998 Summer;31(2):281-5 [PMID: 9652103]
  69. Behav Anal Pract. 2016 Jun 09;9(3):211-22 [PMID: 27622127]
  70. J Appl Behav Anal. 2008 Summer;41(2):243-8 [PMID: 18595288]
  71. J Abnorm Psychol. 1979 Aug;88(4):418-26 [PMID: 479464]
  72. J Appl Behav Anal. 1983 Winter;16(4):417-33 [PMID: 6654772]
  73. Behav Anal Pract. 2019 May 28;13(2):387-393 [PMID: 32642395]
  74. J Appl Behav Anal. 2002 Summer;35(2):195-8 [PMID: 12102140]
  75. J Appl Behav Anal. 2009 Fall;42(3):711-6 [PMID: 20190933]
  76. J Appl Behav Anal. 1991 Summer;24(2):245-9 [PMID: 1890045]
  77. J Appl Behav Anal. 2013 Spring;46(1):296-300 [PMID: 24114102]
  78. J Appl Behav Anal. 2008 Spring;41(1):25-37 [PMID: 18468277]
  79. J Appl Behav Anal. 2003 Spring;36(1):125-8 [PMID: 12723876]
  80. J Appl Behav Anal. 1996 Summer;29(2):173-88 [PMID: 8682735]
  81. J Appl Behav Anal. 2007 Fall;40(3):565-70 [PMID: 17970271]

Word Cloud

Created with Highcharts 10.0.0fieldABAgoalAutistic"indistinguishability"concernsbehaviorchangescriticism"indistinguishable"implicationsLovaasvalidityself-advocatedegreeappliedanalysisproducedpowerfulimprovementslivesmanyHoweverimmuneOneoutsidetherapymakepeopleappearpeerspaperexaminesdefininganalytictermsexploringtermusedtwonotablestudies1987[1]3-9Rekers&1974[2]173-190providingreviewsocialethicalexplicitimpliedpartiallyaccomplishedincorporatingcommunityarguecommunity'ssurroundinglegitimacyneedgivendueconsiderationSuggestionsaddressingprogramsresearchdiscussedemphasizingimportanceconsideringstakeholdervaluestakingcriticismsseriouslymakingnecessaryVoiceListening?AutismCriticismEthicsIndistinguishabilitySelf-advocatesSocial

Similar Articles

Cited By (6)