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Palliative medicine
09, 2023;37 (8): 1252-1265.

What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals.

Blanca Goni-Fuste, Denise Pergolizzi, Cristina Monforte-Royo, Joaquim Julià-Torras, Andrea Rodríguez-Prat, Iris Crespo
Author Information
  1. Blanca Goni-Fuste: Department of Nursing, School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Sant Cugat del Vallés, Barcelona, Spain. ORCID
  2. Denise Pergolizzi: School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Sant Cugat del Vallés, Barcelona, Spain.
  3. Cristina Monforte-Royo: Department of Nursing, School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Sant Cugat del Vallés, Barcelona, Spain.
  4. Joaquim Julià-Torras: School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Sant Cugat del Vallés, Barcelona, Spain. ORCID
  5. Andrea Rodríguez-Prat: Department of Humanities, School of Humanities, Universitat Internacional de Catalunya, Barcelona, Spain. ORCID
  6. Iris Crespo: Department of Basic Sciences, School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Barcelona, Spain. ORCID
PMID: 37421148 DOI: 10.1177/02692163231183998

Abstract

BACKGROUND: The palliative care initial encounter can have a positive impact on the quality of life of patients and family carers if it proves to be a meaningful experience. A better understanding of what makes the encounter meaningful would reinforce the provision of person-centred, quality palliative care.
AIM: To explore the expectations that patients with cancer, family carers and palliative care professionals have of this initial encounter.
DESIGN: Qualitative descriptive study with content analysis of transcripts from 60 semi-structured interviews.
SETTING/PARTICIPANTS: Twenty patients with cancer, 20 family carers and 20 palliative care professionals from 10 institutions across Spain.
RESULTS: Four themes were developed from the analysis of interviews: (1) the initial encounter as an opportunity to understand what palliative care entails; (2) individualised care; (3) professional commitment to the patient and family carers: present and future; and (4) acknowledgement.
CONCLUSION: The initial encounter becomes meaningful when it facilitates a shared understanding of what palliative care entails and acknowledgement of the needs and/or roles of patients with cancer, family carers and professionals. Further studies are required to explore how a perception of acknowledgement may best be fostered in the initial encounter.

Keywords

Palliative care cancer caregivers patients qualitative research therapeutic alliance

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MeSH Term

Humans
Palliative Care
Caregivers
Quality of Life
Family
Qualitative Research
Neoplasms
Journal Article Research Support, Non-U.S. Gov't
Article has an altmetric score of 12

Word Cloud

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