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BMC palliative care
Jul 21, 2023;22 (1): 100.

Key aspects of psychosocial needs in palliative care - a qualitative analysis within the setting of a palliative care unit in comparison with specialised palliative home care.

Cathrin Michel, Hannah Seipp, Katrin Kuss, Michaela Hach, Andrea Kussin, Jorge Riera-Knorrenschild, Stefan Bösner
Author Information
  1. Cathrin Michel: Department of General Practice and Family Medicine, Philipps- University Marburg, Karl-von-Frisch-Straße 4, 35032, Marburg, Germany. zimpfer@med.uni-marburg.de.
  2. Hannah Seipp: Department of General Practice and Family Medicine, Philipps- University Marburg, Karl-von-Frisch-Straße 4, 35032, Marburg, Germany.
  3. Katrin Kuss: Department of General Practice and Family Medicine, Philipps- University Marburg, Karl-von-Frisch-Straße 4, 35032, Marburg, Germany.
  4. Michaela Hach: Professional Association of Specialised Palliative Homecare in Hesse, Wiesbaden, Germany.
  5. Andrea Kussin: Department of Anaesthesia and Intensive Care Therapy, Philipps-University of Marburg, Marburg, Germany.
  6. Jorge Riera-Knorrenschild: Cilinic of Hematology, Oncology and Immunology, Philipps-University of Marburg, Marburg, Germany.
  7. Stefan Bösner: Department of General Practice and Family Medicine, Philipps- University Marburg, Karl-von-Frisch-Straße 4, 35032, Marburg, Germany.
PMID: 37480117 DOI: 10.1186/s12904-023-01227-z

Abstract

BACKGROUND: The number of palliative care patients with complex needs is increasing in developed countries. In addition to physical aspects and symptom control, psychosocial aspects are of great importance for palliative care patients. The aim of this study was to understand which psychosocial aspects are important to patients, relatives and health professionals within the setting of a palliative care unit in comparison with specialised palliative home-care (SPHC).
METHODS: We used a qualitative design based on semistructured interviews, which were coded via qualitative content analysis. The study took place in the state of Hesse, Germany, and data collection was conducted in 2017 (interviews from the ELSAH study, which was conducted in a SPHC) and 2018 (supplementary interviews conducted in a palliative care unit). The results from both settings were compared.
RESULTS: In the palliative care unit, 10 health professionals, 11 patients and 8 relatives were interviewed. In the outpatient setting, we interviewed 30 health professionals, 14 patients and 14 relatives. We identified four key psychosocial issues related to palliative care that were relevant in both the inpatient and outpatient settings: care planning, patient-centred care, a protected environment with feelings of safety, and psychological well-being. In addition, immediate availability of medical staff, greater relief of the relatives and better accessibility of psychological care were more important in the inpatient setting than in the specialised palliative home care setting.
CONCLUSIONS: Knowledge and application of the identified key issues may improve patient-centred palliative care. Accessibility of psychological care and immediate availability of medical staff may be important factors for enhancing psychological well-being in the inpatient palliative care setting. Consideration of the identified key issues may help to develop more collaborative transitions between the palliative care unit and the SPHC and may help to provide palliative care patients and their families with care that is appropriate and feasible for them.
TRIAL REGISTRATION: The underlying comparative study of the outpatient setting of specialised palliative home-care (ELSAH) was registered within the German Clinical Trials Register DRKS-ID: DRKS00012421, ( https://drks.de/search/de/trial/DRKS00012421 ) on 19th May 2017.

Keywords

Needs assessment Palliative care Palliative care unit Qualitative research. Quality of health care Specialised palliative home care

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MeSH Term

Humans
Palliative Care
Hospice and Palliative Care Nursing
Inpatients
Outpatients
Home Care Services
Journal Article
Article has an altmetric score of 3

Word Cloud

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