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JBI evidence synthesis
Jul 01, 2024;22 (7): 1362-1370.

Experiences of informal caregivers of people with dementia in low- and middle-income countries: a systematic review protocol.

Hien Thi Ho, Romy Jia, Nahal Habibi, Cindy Stern, Gillian Carter, Olinda Santin, Jennifer Stone, Chelsea Valenzuela, Edoardo Aromataris
Author Information
  1. Hien Thi Ho: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  2. Romy Jia: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  3. Nahal Habibi: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  4. Cindy Stern: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  5. Gillian Carter: School of Nursing and Midwifery, Faculty of Medicine, Health and Life Sciences, Queen's University Belfast, Belfast, UK. ORCID
  6. Olinda Santin: School of Nursing and Midwifery, Faculty of Medicine, Health and Life Sciences, Queen's University Belfast, Belfast, UK. ORCID
  7. Jennifer Stone: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  8. Chelsea Valenzuela: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
  9. Edoardo Aromataris: JBI, School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, SA, Australia. ORCID
PMID: 38477072 DOI: 10.11124/JBIES-23-00470

Abstract

OBJECTIVE: This review aims to synthesize the experiences of informal caregivers of people with dementia in low- and middle-income countries (LMICs).
INTRODUCTION: Globally, the burden of dementia is increasing disproportionately in LMICs. Informal caregivers play a vital role and face multiple challenges in LMICs, even though they also often lack the awareness and skills to provide adequate care for people living with dementia. Many LMICs have limited resources and caregivers lack support services. Understanding their experiences and perceptions may improve interventions, helping caregivers to better support those living with dementia.
INCLUSION CRITERIA: Studies from all settings in LMICs will be considered. Qualitative data from qualitative or mixed methods studies that explore caregivers' experiences and perceptions will be included in this review. Participants are informal caregivers of people diagnosed with dementia at any stage, regardless of age, gender, or their relationship with people living with dementia.
METHODS: This review will follow the JBI methodology for a qualitative systematic reviews, with meta-aggregation as the synthesis method. The review will be reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. A 3-step search strategy will be used to locate published and unpublished studies in MEDLINE, CINAHL, Embase, PsycINFO, AgeLine, LILACS, African Index Medicus, ProQuest Dissertations and Theses, Open Dissertations, Web of Science Core Collection, and Google Scholar. There will be no date or language limitations. All studies will be screened against the inclusion CRITERIA and data will be extracted and critically appraised for methodological quality by 2 independent reviewers using JBI tools. Confidence in the final synthesized findings will be assessed using the ConQual approach.
REVIEW REGISTRATION: PROSPERO CRD42023453814.

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MeSH Term

Humans
Caregivers
Dementia
Systematic Reviews as Topic
Developing Countries
Qualitative Research
Journal Article
Article has an altmetric score of 7

Word Cloud

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