Defining well-being in psoriasis: A Delphi consensus among healthcare professionals and patients.
Esteban Daudén, I Belinchón, E Colominas-González, P Coto, P de la Cueva, F Gallardo, J L Poveda, E Ramírez, S Ros, R Ruíz-Villaverde, M Comellas, Luís Lizán
Author Information
Esteban Daudén: Department of Dermatology, Instituto de Investigación Sanitaria de La Princesa (IIS-IP), Hospital Universitario de La Princesa, Diego de León, 62, 28006, Madrid, Spain. estebandauden@gmail.com. ORCID
I Belinchón: Department of Dermatology, Hospital General Universitario Dr Balmis-ISABIAL-UMH, Alicante, Spain. ORCID
E Colominas-González: Department of Pharmacy, Hospital del Mar, Barcelona, Spain. ORCID
P Coto: Department of Dermatology, Hospital Vital Álvarez Buylla, Mieres, Spain.
P de la Cueva: Department of Dermatology, Hospital Universitario Infanta Leonor, Madrid, Spain. ORCID
F Gallardo: Department of Dermatology, Hospital del Mar, Barcelona, Spain. ORCID
J L Poveda: Department of Pharmacy, Hospital Universitario y Politécnico La Fe, Valencia, Spain. ORCID
E Ramírez: Department of Pharmacy, Hospital Universitario de La Princesa, Madrid, Spain. ORCID
S Ros: Departments of Dermatology and Rheumatology, and Cardiac Transplant Unit, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain. ORCID
R Ruíz-Villaverde: Department of Dermatology, Hospital Universitario San Cecilio, Granada, Spain. ORCID
M Comellas: Outcomes'10, Castellón de la Plana, Spain. ORCID
Luís Lizán: Outcomes'10, Universidad Jaume I, Castellón de la Plana, Spain. ORCID
Psoriasis is a chronic skin disease that negatively impacts on patient's life. A holistic approach integrating well-being assessment could improve disease management. Since a consensus definition of well-being in psoriasis is not available, we aim to achieve a multidisciplinary consensus on well-being definition and its components. A literature review and consultation with psoriasis patients facilitated the design of a two-round Delphi questionnaire targeting healthcare professionals and psoriasis patients. A total of 261 panellists (65.1% patients with psoriasis, 34.9% healthcare professionals) agreed on the dimensions and components that should integrate the concept of well-being: emotional dimension (78.9%) [stress (83.9%), mood disturbance (85.1%), body image (83.9%), stigma/shame (75.1%), self-esteem (77.4%) and coping/resilience (81.2%)], physical dimension (82.0%) [sleep quality (81.6%), pain/discomfort (80.8%), itching (83.5%), extracutaneous manifestations (82.8%), lesions in visible areas (84.3%), lesions in functional areas (85.8%), and sex life (78.2%)], social dimension (79.5%) [social relationships (80.8%), leisure/recreational activities (80.3%), support from family/friends (76.6%) and work/academic life (76.5%)], and satisfaction with disease management (78.5%) [treatment (78.2%), information received (75.6%) and medical care provided by the dermatologist (80.1%)]. This well-being definition reflects patients' needs and concerns. Therefore, addressing them in psoriasis will optimise management, contributing to better outcomes and restoring normalcy to the patient's life.
