Factors that inhibit the social involvement of children with autism: perspectives of parents in the Cape Coast metropolis.

Mawulorm Akpeke, Wonder Agbemavi, Kenneth Setorwu Adde
Author Information
  1. Mawulorm Akpeke: Department of Population and Health, University of Cape Coast, Cape Coast, Ghana. akpeke.mawulorm@gmail.com.
  2. Wonder Agbemavi: School of Demography, Australian National University, Canberra, Australia.
  3. Kenneth Setorwu Adde: Department of Population and Health, University of Cape Coast, Cape Coast, Ghana.

Abstract

BACKGROUND: Many countries, including Ghana, continue to face challenges concerning the social involvement of persons with disabilities such as autism. This study investigated the factors that inhibit the social involvement of children with autism in the Cape Coast Metropolis.
METHODS: The study was conducted in the Cape Coast metropolis. A qualitative interpretivism approach was used. Twenty-three participants were recruited for the study using purposive sampling. An in-depth interview guide was employed for data collection, and thematic analysis was used.
RESULTS: We found that most autistic children do not get the opportunity to be involved in social activities due to their autistic features, socio-cultural and their parents' financial status. The findings also showed that the inability of children with autism to speak fluently and sit for long without being aggressive prevents their inclusion in social activities. However, older children with autism were considered more for activities in the metropolis than those within the younger ages. Financial constraint was a common challenge that prevented some parents from bringing up their children with autism in ways that would make them considerable for social roles.
CONCLUSION: Factors such as autistic features, sociocultural and financial constraints inhibited the social involvement of children with autism. Underlining these barriers is the issue of inadequate knowledge of autism and financial barriers for parents of children with autism. We, therefore, recommended that the Ghana Health Service and the Ministry of Health to intensify advocacy programs targeted at educating the public on autism to reduce discrimination.

Keywords

References

  1. J Autism Dev Disord. 2016 Mar;46(3):942-53 [PMID: 26659549]
  2. J Autism Dev Disord. 2020 Oct;50(10):3714-3727 [PMID: 32107700]
  3. PLoS Med. 2013 Dec;10(12):e1001573 [PMID: 24358030]
  4. Disabil Rehabil. 2021 Jan;43(1):13-26 [PMID: 31112671]
  5. MMWR Surveill Summ. 2007 Feb 9;56(1):1-11 [PMID: 17287714]
  6. PLoS One. 2018 Aug 29;13(8):e0202071 [PMID: 30157207]
  7. Behav Neurol. 2016;2016:3501910 [PMID: 27872512]
  8. Front Psychiatry. 2019 Nov 26;10:841 [PMID: 31849722]
  9. J Autism Dev Disord. 2019 Aug;49(8):3290-3308 [PMID: 31102193]
  10. Am J Phys Med Rehabil. 2014 Jan;93(1 Suppl 1):S50-7 [PMID: 24356083]
  11. Qual Quant. 2018;52(4):1893-1907 [PMID: 29937585]
  12. Int J Behav Nutr Phys Act. 2013 Aug 15;10:98 [PMID: 23945179]
  13. Scand J Occup Ther. 2017 May;24(3):187-196 [PMID: 27329683]
  14. Clin Pract Epidemiol Ment Health. 2018 Mar 30;14:99-108 [PMID: 29785200]
  15. Afr J Psychiatry (Johannesbg). 2011 Jul;14(3):208-10 [PMID: 21863205]
  16. J Child Neurol. 2016 Jul;31(8):1018-26 [PMID: 26979098]
  17. MMWR Surveill Summ. 2023 Mar 24;72(2):1-14 [PMID: 36952288]
  18. J Child Adolesc Ment Health. 2018 Nov;30(3):149-165 [PMID: 30403918]
  19. Lancet. 2006 Jul 15;368(9531):210-5 [PMID: 16844490]

MeSH Term

Humans
Ghana
Male
Female
Parents
Child
Autistic Disorder
Qualitative Research
Social Participation
Child, Preschool
Adolescent
Adult

Word Cloud

Created with Highcharts 10.0.0autismchildrensocialinvolvementstudyCapeCoastmetropolisautisticactivitiesfinancialparentsGhanainhibitusedfeaturesFactorsbarriersHealthBACKGROUND:ManycountriesincludingcontinuefacechallengesconcerningpersonsdisabilitiesinvestigatedfactorsMetropolisMETHODS:conductedqualitativeinterpretivismapproachTwenty-threeparticipantsrecruitedusingpurposivesamplingin-depthinterviewguideemployeddatacollectionthematicanalysisRESULTS:foundgetopportunityinvolvedduesocio-culturalparents'statusfindingsalsoshowedinabilityspeakfluentlysitlongwithoutaggressivepreventsinclusionHoweverolderconsideredwithinyoungeragesFinancialconstraintcommonchallengepreventedbringingwaysmakeconsiderablerolesCONCLUSION:socioculturalconstraintsinhibitedUnderliningissueinadequateknowledgethereforerecommendedServiceMinistryintensifyadvocacyprogramstargetededucatingpublicreducediscriminationautism:perspectivesAutismspectrumdisorderChildrenIntellectualdisabilityParentsSocial

Similar Articles

Cited By

No available data.