Exploring health literacy development through co-design: understanding the expectations for health literacy mediators.

Madeline Spencer, Vaughan Cruickshank, Nenagh Kemp, Rosie Nash
Author Information
  1. Madeline Spencer: School of Medicine, College of Health and Medicine, University of Tasmania, 17 Liverpool Street, Hobart, Tasmania 7001, Australia. ORCID
  2. Vaughan Cruickshank: School of Education, College of Arts, Law and Education, University of Tasmania, Newnham Drive, Newnham, Tasmania 7001, Australia.
  3. Nenagh Kemp: School of Psychological Sciences, College of Health and Medicine, University of Tasmania, Grosvenor Street, Sandy Bay, Tasmania 7001, Australia.
  4. Rosie Nash: School of Medicine, College of Health and Medicine, University of Tasmania, 17 Liverpool Street, Hobart, Tasmania 7001, Australia.

Abstract

Health promotion efforts that enhance health literacy among individuals, organizations, and communities are gaining attention globally. Additionally, co-designed and community-led health promotion interventions have gained recognition as an effective strategy for addressing health issues through more effective and sustainable health outcomes. This qualitative study conducted in Tasmania, Australia, aimed to co-design the emerging Health Literacy Mediator (HLM) and to assess the support, expectations, and need for such a role. Following an Ophelia approach, data for this research were collected via focus group discussions within an online workshop, enabling diverse perspectives to emerge and be analysed via thematic analysis. Discussions around how the role could impact the individuals and families presented in the short case scenarios (vignettes) produced four strong expectations: that they are solution-focused, that they have a duty to facilitate change, that the role is based in community, and that the role targets those in the community who need them most to ensure the greatest impact. Participants also shared other recommendations and supporting ideas for the role. The potential role of HLM holds substantial promise in addressing health inequities for all individuals, regardless of background or socioeconomic status, by optimizing time management, simplifying navigation, ensuring the right care, and building community trust. By creating connections and advocating for individuals, HLMs could effectively break down barriers to healthcare access. This proactive approach not only addresses immediate health concerns but could also lay the groundwork for sustained improvements in public health outcomes in the future.

Keywords

References

  1. Soc Sci Med. 2022 Jan;292:114636 [PMID: 34894457]
  2. Lancet Digit Health. 2019 Oct;1(6):e248-e249 [PMID: 33323247]
  3. BMC Nurs. 2024 Apr 25;23(1):278 [PMID: 38664742]
  4. BMC Health Serv Res. 2023 Aug 25;23(1):911 [PMID: 37626346]
  5. JBI Evid Synth. 2020 Jul;18(7):1389-1469 [PMID: 32813388]
  6. Glob Health Promot. 2021 Dec;28(4):8-16 [PMID: 34159844]
  7. BMC Public Health. 2014 Jul 07;14:694 [PMID: 25002024]
  8. Int J Environ Res Public Health. 2019 Sep 14;16(18): [PMID: 31540040]
  9. BMC Health Serv Res. 2023 Nov 9;23(1):1230 [PMID: 37946189]
  10. BMC Med Educ. 2020 Jan 30;20(1):28 [PMID: 32000759]
  11. Front Public Health. 2023 Feb 16;11:1105640 [PMID: 36875396]
  12. Int J Equity Health. 2023 Jul 28;22(1):140 [PMID: 37507733]
  13. Glob Adv Health Med. 2020 Sep 21;9:2164956120959274 [PMID: 33014630]
  14. Health Promot J Austr. 2023 Oct;34(4):910-922 [PMID: 36746622]
  15. PLoS One. 2020 Jun 19;15(6):e0234444 [PMID: 32559254]
  16. Health Lit Res Pract. 2021 Jul;5(3):e234-e243 [PMID: 34379549]
  17. Int J Environ Res Public Health. 2018 Jun 05;15(6): [PMID: 29874883]
  18. Glob Pediatr Health. 2021 Jun 18;8:2333794X211025401 [PMID: 34212070]
  19. J Patient Exp. 2022 Apr 12;9:23743735221092627 [PMID: 35434291]
  20. Public Health Rep. 2014 Jan-Feb;129 Suppl 2:19-31 [PMID: 24385661]
  21. Glob Health Action. 2015 Jun 24;8:27106 [PMID: 26112142]
  22. N Engl J Med. 2023 Nov 23;389(21):1928-1931 [PMID: 37982404]
  23. BMC Fam Pract. 2020 Jan 28;21(1):19 [PMID: 31992209]
  24. Public Health Res Pract. 2022 Jun 15;32(2): [PMID: 35702744]
  25. J Environ Health Sci. 2020;6(1): [PMID: 33604453]
  26. J Palliat Med. 2020 Aug;23(8):1009-1012 [PMID: 32155378]
  27. BMC Public Health. 2013 Jul 16;13:658 [PMID: 23855504]
  28. Glob Adv Health Med. 2021 Aug 09;10:21649561211039456 [PMID: 34395059]
  29. BMC Health Serv Res. 2013 Jul 08;13:263 [PMID: 23835131]
  30. Cureus. 2024 Jul 5;16(7):e63881 [PMID: 39099901]
  31. Cureus. 2023 Oct 26;15(10):e47731 [PMID: 38021686]
  32. Int J Community Based Nurs Midwifery. 2018 Jan;6(1):65-75 [PMID: 29344537]
  33. BMC Public Health. 2024 Apr 27;24(1):1182 [PMID: 38678179]
  34. Health Promot Int. 2024 Oct 1;39(5): [PMID: 39397747]
  35. Health Soc Care Community. 2020 May;28(3):734-746 [PMID: 31777125]
  36. BMC Health Serv Res. 2023 Aug 22;23(1):886 [PMID: 37608376]
  37. Public Health. 2012 Sep;126 Suppl 1:S4-S10 [PMID: 22784581]
  38. Health Promot J Austr. 2025 Jan;36(1):e905 [PMID: 39073282]
  39. Health Promot Int. 2019 Oct 1;34(5):887-891 [PMID: 31755534]
  40. PLoS One. 2019 Dec 23;14(12):e0227007 [PMID: 31869381]
  41. Front Digit Health. 2023 Nov 17;5:1264780 [PMID: 38046643]
  42. BMC Public Health. 2020 Nov 13;20(1):1700 [PMID: 33187489]
  43. BMC Health Serv Res. 2018 Dec 20;18(1):989 [PMID: 30572887]

Grants

  1. OP.057420/College of Health and Medicine
  2. /University of Tasmania

MeSH Term

Humans
Health Literacy
Health Promotion
Focus Groups
Tasmania
Qualitative Research
Female
Male
Adult

Word Cloud

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