Reevaluating 'seriousness' in genetic conditions: balancing clinical criteria and lived experiences.

Shizuko Takahashi, Rie Iizuka, Tsutomu Sawai
Author Information
  1. Shizuko Takahashi: Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore. shizuko@nus.edu.sg. ORCID
  2. Rie Iizuka: Center for Collaborative Sciences, Office of Research and Academic-Government-Community Collaboration, Headquarters for Co-creative Future Sciences, Hiroshima University, Hiroshima, Japan.
  3. Tsutomu Sawai: Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.

Abstract

No abstract text available.

References

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  6. Croydon S. Politics of inclusive consultation?: How the voices of disabled people���s rights and feminist campaigners prevailed in the debate on new eugenics in Japan. Contemp Jpn. 2024;36:222���42. [DOI: 10.1080/18692729.2023.2168841]
  7. Mintz KT, Stramondo JA, Tabor HK. Nothing about us without us in precision medicine: a call to reframe disability difference in genetics and genomics. Hastings Cent Rep [Internet]. 2024 Dec [cited 2025 Feb 7];54. Available from: https://onlinelibrary.wiley.com/doi/10.1002/hast.4928

Grants

  1. 24K00039, 24H00813/MEXT | Japan Society for the Promotion of Science (JSPS)
  2. JPMJRS22J4/MEXT | Japan Science and Technology Agency (JST)

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