Weathering the Storm: Climate-Related Weather Event Experiences of Families of Children With Medical Complexity.

Jennifer Baumbusch, Vanessa Fong, Esther Lee, Nilanga Aki Bandara, Koushambhi Basu Khan
Author Information
  1. Jennifer Baumbusch: School of Nursing, The University of British Columbia, Vancouver, British Columbia, Canada. ORCID
  2. Vanessa Fong: School of Nursing, The University of British Columbia, Vancouver, British Columbia, Canada.
  3. Esther Lee: Complex Care, Division of Pediatric Hospital Medicine, Department of Pediatrics, Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
  4. Nilanga Aki Bandara: Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
  5. Koushambhi Basu Khan: School of Nursing, The University of British Columbia, Vancouver, British Columbia, Canada.

Abstract

BACKGROUND: Climate change is increasingly an urgent concern because of the catastrophic and irreversible impacts on the planet and society as a whole. In recent years, there have also been more frequent and extreme weather events such as heatwaves, droughts, floods and wildfires across the globe. Although families of children with medical complexity may be particularly vulnerable to the impacts of extreme weather events, few studies exist that address this topic.
METHODS: Drawing upon a subset of data from two qualitative studies, we explored the experiences of families during climate-related weather events in British Columbia, Canada. During the summer and fall of 2021, this area experienced a series of extreme weather events (e.g., heat dome, wildfires and atmospheric rivers causing flooding) in rapid succession. Semistructured interviews were conducted with 30 parents between July 2021 and April 2022. Descriptive content analysis was used for data analysis.
RESULTS: Participants described their lived experiences during the heat dome, wildfires and flooding of 2021. Across all of the weather events, children with medical complexity experienced social isolation and, for some, increased anxiety. Participants also shared adaptive measures, or strategies, they used during these events. In the absence of government supports, families drew upon their informal peer networks in some situations.
CONCLUSIONS: The unique needs of children with medical complexity are not accounted for in existing government policies and supports related to climate-related weather events. Families are self-reliant and draw upon their informal peer network for supports. There is an urgent need for inclusive programs and supports across emergency management, health, education and social care to address the needs of this group.

Keywords

References

  1. Int J Dev Disabil. 2023 Feb 1;70(7):1184-1197 [PMID: 39712440]
  2. J Appl Res Child. 2021;12(1): [PMID: 35371616]
  3. Front Public Health. 2024 Mar 13;12:1229738 [PMID: 38544735]
  4. Disabil Rehabil. 2023 Dec;45(25):4338-4358 [PMID: 36426560]
  5. Child Care Health Dev. 2022 Nov;48(6):970-978 [PMID: 35043430]
  6. J Emerg Manag. 2015 Jan-Feb;13(1):7-18 [PMID: 25779895]
  7. Curr Environ Health Rep. 2022 Sep;9(3):451-464 [PMID: 35633370]
  8. Clin Pediatr (Phila). 2013 Jun;52(6):549-56 [PMID: 23539684]
  9. Disaster Med Public Health Prep. 2010 Oct;4(3):240-5 [PMID: 21149221]
  10. J Health Care Poor Underserved. 2007 May;18(2):405-17 [PMID: 17483568]
  11. Environ Epidemiol. 2022 Jan 19;6(1):e189 [PMID: 35169667]
  12. Disaster Med Public Health Prep. 2016 Apr;10(2):225-32 [PMID: 26794934]
  13. Curr Psychiatry Rep. 2021 Oct 13;23(12):80 [PMID: 34643813]
  14. Clin Pediatr (Phila). 2023 Jun;62(6):633-644 [PMID: 36475307]
  15. Health Expect. 2020 Oct;23(5):1144-1154 [PMID: 32542954]
  16. J Child Health Care. 2023 Sep 22;:13674935231203274 [PMID: 37740509]
  17. Health Secur. 2018 May/Jun;16(3):178-192 [PMID: 29883200]
  18. Med J Aust. 2022 Jul 4;217(1):9-12 [PMID: 35708259]
  19. Nurs Health Sci. 2013 Sep;15(3):398-405 [PMID: 23480423]
  20. J Autism Dev Disord. 2012 Jun;42(6):954-60 [PMID: 21717269]

Grants

  1. /CIHR
  2. /UBC School of Nursing's Lyle Creelman Endowment Fund

MeSH Term

Humans
Child
Male
Female
Climate Change
British Columbia
Qualitative Research
Weather
Child, Preschool
Adolescent
Adult
Extreme Weather
Children with Disabilities
Social Isolation
Family
Parents

Word Cloud

Created with Highcharts 10.0.0eventsweatherchildrenmedicalcomplexitysupportsextremewildfiresfamiliesupon2021changeurgentimpactsalsoacrossstudiesaddressdataqualitativeexperiencesclimate-relatedexperiencedheatdomefloodinganalysisusedParticipantslivedsocialgovernmentinformalpeerneedsFamiliesBACKGROUND:ClimateincreasinglyconcerncatastrophicirreversibleplanetsocietywholerecentyearsfrequentheatwavesdroughtsfloodsglobeAlthoughmayparticularlyvulnerableexisttopicMETHODS:DrawingsubsettwoexploredBritishColumbiaCanadasummerfallareaseriesegatmosphericriverscausingrapidsuccessionSemistructuredinterviewsconducted30parentsJulyApril2022DescriptivecontentRESULTS:describedAcrossisolationincreasedanxietysharedadaptivemeasuresstrategiesabsencedrewnetworkssituationsCONCLUSIONS:uniqueaccountedexistingpoliciesrelatedself-reliantdrawnetworkneedinclusiveprogramsemergencymanagementhealtheducationcaregroupWeatheringStorm:Climate-RelatedWeatherEventExperiencesChildrenMedicalComplexityclimateexperienceresearch

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