Informal Support and Burden among Parents of Adults with Intellectual and/or Developmental Disabilities.

Suzanne Robinson, Jonathan A Weiss, Yona Lunsky, Hélène Ouellette-Kuntz
Author Information
  1. Suzanne Robinson: York University, Toronto, ON, Canada. ORCID
  2. Jonathan A Weiss: York University, Toronto, ON, Canada.
  3. Yona Lunsky: Centre for Addiction and Mental Health, Toronto, ON, Canada.
  4. Hélène Ouellette-Kuntz: Queen's University, Kingston, ON, Canada.

Abstract

BACKGROUND: Parents often play a lifelong role in supporting their sons and daughters with intellectual and/or developmental disabilities (IDD). There is a need to better understand parent resources, particularly when the individual with IDD has behaviour problems, as the latter has consistently been linked to parental burden.
METHODS: The current study aimed to investigate the relationship between the behaviour support needs of 212 adults with IDD and parental burden, and whether perceived helpfulness of informal supports moderated this relationship. The helpfulness of individual sources of informal support was also explored.
RESULTS: Informal support was negatively related to burden, although it did not act as a moderator. Individual sources varied in terms of how they were related to burden, but none acted as moderators.
CONCLUSIONS: Although informal social support appears to be important to parents and may help alleviate burden, it does not appear to act as a moderator as anticipated.

Keywords

MeSH Term

Adolescent
Adult
Aged
Aged, 80 and over
Cost of Illness
Developmental Disabilities
Female
Humans
Intellectual Disability
Male
Middle Aged
Parents
Social Support
Young Adult

Word Cloud

Created with Highcharts 10.0.0burdensupportdisabilitiesIDDparentalinformalParentsintellectualand/ordevelopmentalindividualbehaviourrelationshiphelpfulnesssourcesInformalrelatedactmoderatorsocialBACKGROUND:oftenplaylifelongrolesupportingsonsdaughtersneedbetterunderstandparentresourcesparticularlyproblemslatterconsistentlylinkedMETHODS:currentstudyaimedinvestigateneeds212adultswhetherperceivedsupportsmoderatedalsoexploredRESULTS:negativelyalthoughIndividualvariedtermsnoneactedmoderatorsCONCLUSIONS:AlthoughappearsimportantparentsmayhelpalleviateappearanticipatedSupportBurdenamongAdultsIntellectualDevelopmentalDisabilities

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