How do people with dementia utilise primary care physicians and specialists within dementia networks? Results of the Dementia Networks in Germany (DemNet-D) study.
Markus Wübbeler, Jochen René Thyrian, Bernhard Michalowsky, Pia Erdmann, Johannes Hertel, Bernhard Holle, Johannes Gräske, Susanne Schäfer-Walkmann, Wolfgang Hoffmann
Author Information
Markus Wübbeler: German Center for Neurodegenerative Diseases (DZNE), Working Group "Interventional Health Care Research", Site Rostock/Greifswald, Greifswald, Germany.
Jochen René Thyrian: German Center for Neurodegenerative Diseases (DZNE), Working Group "Interventional Health Care Research", Site Rostock/Greifswald, Greifswald, Germany.
Bernhard Michalowsky: German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany.
Pia Erdmann: German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany.
Johannes Hertel: German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany.
Bernhard Holle: German Center for Neurodegenerative Diseases (DZNE), Working Group "Care Structures" Site Witten, Witten, Germany.
Johannes Gräske: Department of Human and Health Science, University of Bremen, Bremen, Germany.
Susanne Schäfer-Walkmann: IfaS Zentrum für kooperative Forschung an der DHBW Stuttgart, Fakultät Sozialwesen, Stuttgart, Germany.
Wolfgang Hoffmann: German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Greifswald, Germany.
Outpatient dementia healthcare is predominantly fragmented, and dementia networks (DNs) represent an integrated care concept to overcome this problem. Little is known about the patients of these networks with regard to utilisation of physicians and associated factors. We interviewed 560 caregivers of people with dementia in 13 different DNs in Germany in 2013 and assessed socio-demographics, clinical data and physician utilisation. Networks were categorised in predominantly medical DNs and community-oriented DNs. Descriptive and multivariate statistical models were used to identify associated factors between DNs and users' data. Overall, the users of networks received high rates of physician care; 93% of the sample stated at least one contact with a primary care physician within the last 6 months, and 74% had been treated by a specialist (neurology/psychiatry physician). Only 5% of the sample had no contact with a physician in the 6 months preceding the interview. Females showed a lower odds for physician specialist consultations (OR = 0.641). Users of medical DNs receive greater specialist consultations overall (OR = 8.370). Compared to the German general population and people with dementia in other settings, users of DNs receive physician care more regularly, especially with regard to the consultations of neurologist/psychiatrists. Therefore, DNs seem to perform a supportive role within the integration of physician healthcare. More research is needed on the appropriate relationship between the needs of the people with dementia and utilisation behaviour.