[Integrating patient education in your oncology practice].

Juliette Thariat, Anne Creisson, Blandine Chamignon, Magali Dejode, Marie Gastineau, Christophe Hébert, Fabienne Boissin, Christelle Topfer, Elise Gilbert, Benoit Grondin, Helène Guennoc, Veronique Mari, Solange Buzzo, Dominique Saja, Nathalie Duboue, Rabia Boulahssass, Alexia Tosi, Suzanne Verne, Julie Ducray, Isabelle Benard-Thiery, Jean Marc Ferrero
Author Information
  1. Juliette Thariat: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France. Electronic address: jthariat@gmail.com.
  2. Anne Creisson: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  3. Blandine Chamignon: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  4. Magali Dejode: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  5. Marie Gastineau: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  6. Christophe Hébert: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  7. Fabienne Boissin: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  8. Christelle Topfer: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  9. Elise Gilbert: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  10. Benoit Grondin: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  11. Helène Guennoc: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  12. Veronique Mari: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  13. Solange Buzzo: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  14. Dominique Saja: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  15. Nathalie Duboue: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  16. Rabia Boulahssass: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  17. Alexia Tosi: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  18. Suzanne Verne: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  19. Julie Ducray: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  20. Isabelle Benard-Thiery: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.
  21. Jean Marc Ferrero: Centre Lacassagne, équipe éducation thérapeutique patient, 33, avenue Valombrose, 06189 Nice cedex 2, France.

Abstract

BACKGROUND: patient education is the process by which health professionals impart information to patients and their caregivers that will alter their health behaviors; improve their health status to better manage their lives with a chronic disease. patient education implies a profound paradigm shift in the conception of care among health professionals, and should result in structural care changes. patient education has been promoted by the French Health system for 30years, including in the 2009 HPST law and Cancer Plan 2014-2019. A patient education program was designed in our hospital for breast Cancer patients.
MATERIAL AND METHODS: A multidisciplinary and transversal team of health professionals and resource patients was trained before grant application for funding of the program by the regional health care agency. Management of the project required that a functional unit be built for recording of all patient education related activities. A customized patient education program process was built under the leadership of a coordinator and several patient education project managers during bimonthly meetings, using an accurate timeline and a communication strategy to ensure full institutional support and team engagement.
RESULTS: The grant was prepared in four months and the program started within the next four months with the aim to include 120 patients during year 1. The program includes a diagnosis of patient abilities and well-being resources, followed by collective and individual workshops undertaken in 4months for each patient.
DISCUSSION: patient education is positively evaluated by all participants and may contribute to better health care management in the long term but the financial and human resources allocated to such programs currently underestimate the needs. Sustainability of patient education programs requires that specific tools and more commitment be developed to support health care professionals and to promote patient coping and empowerment in the long term.

Keywords

MeSH Term

France
Humans
Medical Oncology
Neoplasms
Patient Education as Topic
Program Development

Word Cloud

Created with Highcharts 10.0.0educationpatienthealthPatientcareprogramprofessionalspatientsprocessbetterdiseaseteamgrantprojectbuiltsupportfourmonthsresourceslongtermprogramsBACKGROUND:impartinformationcaregiverswillalterbehaviorsimprovestatusmanageliveschronicimpliesprofoundparadigmshiftconceptionamongresultstructuralchangespromotedFrenchHealthsystem30yearsincluding2009HPSTlawCancerPlan2014-2019designedhospitalbreastcancerMATERIALANDMETHODS:multidisciplinarytransversalresourcetrainedapplicationfundingregionalagencyManagementrequiredfunctionalunitrecordingrelatedactivitiescustomizedleadershipcoordinatorseveralmanagersbimonthlymeetingsusingaccuratetimelinecommunicationstrategyensurefullinstitutionalengagementRESULTS:preparedstartedwithinnextaiminclude120 patientsyear 1includesdiagnosisabilitieswell-beingfollowedcollectiveindividualworkshopsundertaken4monthsDISCUSSION:positivelyevaluatedparticipantsmaycontributemanagementfinancialhumanallocatedcurrentlyunderestimateneedsSustainabilityrequiresspecifictoolscommitmentdevelopedpromotecopingempowerment[Integratingoncologypractice]AmbulatoireChronicCompétenceCosteffectivenessEthicsFinancementMaladiechroniqueMédico-économiqueQualitylifeQualitédevieReimbursementSelf-management/empowermentTherapeuticÉducationthérapeutiqueÉthique

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