The Anticipatory Politics of Improving Childhood Survival for Sickle Cell Disease.

Gina Jae
Author Information
  1. Gina Jae: Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY, USA.

Abstract

Crediting scientific discovery for prolonging life is pervasive in biomedical histories of the genetic blood disorder, Sickle Cell Disease. This includes the preventive strategies, such as newborn screening, that have underwritten the success of its life-extending interventions. Newborn screening is a technology that relies not only upon intact health infrastructures but also expertise and enhanced vigilance on the part of caregivers to anticipate complications while they are still open to circumvention. This paper posits that even after overcoming institutional barriers to make newborn screening equitably available, care and vigilance are resources that are themselves subject to what i term , where structural conditions also stratify expectations for the future, including the affective appeal of medical innovations. This paper elaborates the paradigm of anticipatory politics through an ethnographic examination of newborn screening to connect the comprehensive care practices that have improved survival for Sickle Cell Disease, and as the burden of mortality shifts to young adulthood, to expose how those who are resourced to care for these futures preferentially stand to benefit from preventive interventions.

Keywords

References

  1. Haematologica. 2007 Jul;92(7):905-12 [PMID: 17606440]
  2. Pediatrics. 1988 Jun;81(6):749-55 [PMID: 3368274]
  3. Cold Spring Harb Perspect Med. 2013 Oct 01;3(10):a011783 [PMID: 23813607]
  4. N Engl J Med. 1984 Sep 20;311(12):780-3 [PMID: 6382010]
  5. Blood. 2010 Apr 29;115(17):3447-52 [PMID: 20194891]
  6. N Engl J Med. 1986 Jun 19;314(25):1593-9 [PMID: 3086721]
  7. Pediatrics. 1989 May;83(5 Pt 2):819-22 [PMID: 2717308]
  8. Biol Blood Marrow Transplant. 2012 Nov;18(11):1709-15 [PMID: 22659467]
  9. Soc Stud Sci. 2011 Feb;41(1):85-106 [PMID: 21553641]
  10. Public Health Rep. 2013 Mar-Apr;128(2):110-6 [PMID: 23450875]
  11. Semin Perinatol. 2010 Apr;34(2):134-44 [PMID: 20207263]
  12. Pediatr Blood Cancer. 2011 Mar;56(3):413-9 [PMID: 21225920]
  13. Am J Prev Med. 2010 Apr;38(4 Suppl):S512-21 [PMID: 20331952]

Grants

  1. F31 HL126353/NHLBI NIH HHS

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