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Health education research
07 12, 2021;36 (3): 319-336.

Community research collaboration to develop a promotores-based hereditary breast cancer education program for Spanish-speaking Latinas.

Rebeca Almeida, Alejandra Lopez-Macha, Tania Dugatkin, Galen Joseph, Ysabel Duron, Alejandra Hurtado de Mendoza, Kristi D Graves, Laura Fejerman
Author Information
  1. Rebeca Almeida: University of California, San Francisco, CA, USA. ORCID
  2. Alejandra Lopez-Macha: University of California, San Francisco, CA, USA.
  3. Tania Dugatkin: University of California, San Francisco, CA, USA.
  4. Galen Joseph: University of California, San Francisco, CA, USA.
  5. Ysabel Duron: The Latino Cancer Institute, San Jose, CA, USA.
  6. Alejandra Hurtado de Mendoza: Georgetown University, Washington, DC, USA.
  7. Kristi D Graves: Georgetown University, Washington, DC, USA.
  8. Laura Fejerman: University of California, San Francisco, CA, USA.
PMID: 34113985 DOI: 10.1093/her/cyab011

Abstract

Breast cancer (BC) is the most common cancer in Latinas and the leading cause of cancer death. Latinas tend to be diagnosed at later stages, receive poorer quality care and have a higher risk of mortality than non-Latina White (NLW) women. Among women with a genetic predisposition to hereditary BC, genetic counseling can be beneficial. Latinas participate in genetic counseling at lower rates than NLW women. The goal of this study was to develop comprehensive, culturally appropriate materials for community health educators (promotores)-led hereditary BC education program for Spanish-speaking Latinas. We developed the curriculum through feedback from 7 focus groups, with a total of 68 participants (35 promotores and 33 community members). We used a mixed-methods approach that relied on quantitative analysis of survey questions and qualitative content analysis of the focus groups transcripts. Pre and post promotores' training survey responses suggested improvement in the promotores' cancer-related knowledge. Themes that emerged from the qualitative analyses were (i) barriers to health education and/or care; (ii) importance of educating the Latino community about BC and genetics and (iii) role of the promotores. Future research will further evaluate the impact of the program in promotores' knowledge and community members' screening behaviors.

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Grants

  1. TL4 GM118986/NIGMS NIH HHS
  2. UL1 TR001872/NCATS NIH HHS

MeSH Term

Breast Neoplasms
Female
Health Education
Hispanic or Latino
Humans
Motivation
White People
Journal Article Research Support, Non-U.S. Gov't
Article has an altmetric score of 5

Word Cloud

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