Self-management interventions for chronically ill patients with limited health literacy: A descriptive analysis.

M van der Gaag, M Heijmans, C Valli, C Orrego, M Ballester, J Rademakers
Author Information
  1. M van der Gaag: Netherlands institute for health services research (Nivel), Utrecht, Netherlands. ORCID
  2. M Heijmans: Netherlands institute for health services research (Nivel), Utrecht, Netherlands.
  3. C Valli: Iberoamerican Cochrane Centre Barcelona, Barcelona, Spain.
  4. C Orrego: Avedis Donabedian Research Institute (FAD), Barcelona, Spain.
  5. M Ballester: Avedis Donabedian Research Institute (FAD), Barcelona, Spain.
  6. J Rademakers: Netherlands institute for health services research (Nivel), Utrecht, Netherlands.

Abstract

OBJECTIVES: To support patients with limited health literacy with the challenges they face in the day-to-day management of their disease(s), numerous self-management interventions (SMIs) have been developed. To date, it is unclear to what extent SMIs have been developed for chronically ill patients with limited health literacy. This study aims to provide a description of these SMIs and to provide insight in their methodological components.
METHODS: A secondary analysis of the COMPAR-EU database, consisting of SMIs addressing patients with diabetes, chronic obstructive pulmonary disease, obesity and heart failure, was conducted. The database was searched for SMIs addressing health literacy, including cognitive aspects and the capacity to act.
RESULTS: Of the 1681 SMIs in the COMPAR-EU database, 35 studies addressed health literacy, describing 39 SMIs. The overview yields a high variety in interventions given, with overlapping information, but also lacking of specific details.
DISCUSSION: This descriptive analysis shows that there was a large variety in the extensiveness of the description of intervention characteristics and their justification or explanation. A focus on the broad concept of health literacy, including functional skills, cognitive skills and the capacity to act could improve the effectiveness. This should be taken into account in the future development of SMIs.

Keywords

MeSH Term

Humans
Health Literacy
Self-Management
Chronic Disease
Pulmonary Disease, Chronic Obstructive
Female
Self Care
Male
Diabetes Mellitus
Heart Failure
Obesity

Word Cloud

Created with Highcharts 10.0.0SMIshealthliteracypatientsinterventionslimitedanalysisdatabasediseasedevelopedchronicallyillprovidedescriptionCOMPAR-EUaddressingchronicincludingcognitivecapacityactvarietydescriptiveskillsSelf-managementOBJECTIVES:supportchallengesfaceday-to-daymanagementsnumerousself-managementdateunclearextentstudyaimsinsightmethodologicalcomponentsMETHODS:secondaryconsistingdiabetesobstructivepulmonaryobesityheartfailureconductedsearchedaspectsRESULTS:168135studiesaddresseddescribing39overviewyieldshighgivenoverlappinginformationalsolackingspecificdetailsDISCUSSION:showslargeextensivenessinterventioncharacteristicsjustificationexplanationfocusbroadconceptfunctionalimproveeffectivenesstakenaccountfuturedevelopmentliteracy:illnesspatientactivation

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