Informal caregivers' perspectives on participation in a dementia rehabilitation programme.

Josefine Lampinen, Ingeborg Nilsson, Mia Conradsson, H��kan Littbrand, Anna Sondell, Yngve Gustafson, Jerry ��hlin, Nina Lindel��f
Author Information
  1. Josefine Lampinen: Department of Community Medicine and Rehabilitation, Occupational Therapy, Ume�� University, Ume��, Sweden. ORCID
  2. Ingeborg Nilsson: Department of Community Medicine and Rehabilitation, Occupational Therapy, Ume�� University, Ume��, Sweden.
  3. Mia Conradsson: Department of Community Medicine and Rehabilitation, Geriatric Medicine, Ume�� University, Ume��, Sweden.
  4. H��kan Littbrand: Department of Community Medicine and Rehabilitation, Geriatric Medicine, Ume�� University, Ume��, Sweden.
  5. Anna Sondell: Department of Community Medicine and Rehabilitation, Physiotherapy, Ume�� University, Ume��, Sweden.
  6. Yngve Gustafson: Department of Community Medicine and Rehabilitation, Geriatric Medicine, Ume�� University, Ume��, Sweden.
  7. Jerry ��hlin: Department of Public Health and Clinical Medicine, Sustainable Health, Ume�� University, Ume��, Sweden.
  8. Nina Lindel��f: Department of Community Medicine and Rehabilitation, Physiotherapy, Ume�� University, Ume��, Sweden.

Abstract

BACKGROUND: There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.
AIM: To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.
MATERIAL AND METHODS: Fourteen informal caregivers, aged 45-84���years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.
RESULTS: The analysis resulted in seven categories and three themes: , and
CONCLUSIONS AND SIGNIFICANCE: Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.

Keywords

MeSH Term

Humans
Caregivers
Dementia
Male
Female
Aged
Middle Aged
Aged, 80 and over
Qualitative Research
Pilot Projects
Social Support
Occupational Therapy
Interviews as Topic

Word Cloud

Created with Highcharts 10.0.0rehabilitationcaregiversinterdisciplinarydementiainformalparticipationprogrammeeverydayqualitativesupportperson-centredadultslifeANDanalysisBACKGROUND:limitedexperiencecombiningpersonscaregiverAIM:exploreperceivemultidimensionaltargetingcommunity-dwellingolderinfluencedMATERIALMETHODS:Fourteenaged45-84���yearsparticipatedinterviewfollowingrandomisedcontrolledpilotstudyTranscribedinterviewsanalysedusingcontentRESULTS:resultedsevencategoriesthreethemes:CONCLUSIONSSIGNIFICANCE:CombiningeducationperceivedviablevaluablefeltstrengthenedbetterprepareduncertainfutureHoweveralsochallengedroutinesbenefitsappearedoutweighstrainInformalcaregivers'perspectivesCommunity-dwellingexperiencesresearch

Similar Articles

Cited By