Inclusion of people with intellectual disability in the decision-making and governance of disability and community organisations.

Bernadette Curryer, Michelle Donelly, Kim Roots, Margaret Spencer, Will Harding, Katrina Sneath
Author Information
  1. Bernadette Curryer: Side By Side Advocacy, Parramatta, Australia. ORCID
  2. Michelle Donelly: Side By Side Advocacy, Parramatta, Australia. ORCID
  3. Kim Roots: Side By Side Advocacy, Parramatta, Australia. ORCID
  4. Margaret Spencer: The University of Sydney, Sydney, Australia. ORCID
  5. Will Harding: Side By Side Advocacy, Parramatta, Australia.
  6. Katrina Sneath: Side By Side Advocacy, Parramatta, Australia.

Abstract

BACKGROUND: The value of people with disability being involved in the decision-making and governance of community organisations is increasingly being recognised. This paper reports on research that aims to understand governance models that promote the recruitment, decision-making, and leadership of people with intellectual disability.
METHOD: A descriptive phenomenological analysis of 27 semi-structured interviews was conducted. The participants were board members with intellectual disability ( = 5), board members with a disability other than intellectual ( = 6), board members without disability ( = 4), senior management staff ( = 8), and board support people ( = 4).
RESULTS: Five themes emerged from the data. These themes reflect the impact of inclusion, pathways of skill development, accessibility requirements, the provision of skilled support, and the concerns that create a barrier to inclusion.
CONCLUSION: Inclusive governance appears to work best when organisations value and commit to inclusion, setting up skill development pathways to governance roles, with accessible practices and individualised support.

Keywords

Word Cloud

Created with Highcharts 10.0.0disabilitygovernanceintellectualboardpeopleinclusiondecision-makingorganisationsmemberssupportvaluecommunity = 4themespathwaysskilldevelopmentInclusiveBACKGROUND:involvedincreasinglyrecognisedpaperreportsresearchaimsunderstandmodelspromoterecruitmentleadershipMETHOD:descriptivephenomenologicalanalysis27semi-structuredinterviewsconductedparticipants = 5 = 6withoutseniormanagementstaff = 8RESULTS:FiveemergeddatareflectimpactaccessibilityrequirementsprovisionskilledconcernscreatebarrierCONCLUSION:appearsworkbestcommitsettingrolesaccessiblepracticesindividualisedInclusionrights

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